Not Dead Yet (NDY) stands in solidarity with the disability community in its rejection of the U.S Department of Justice Memo released on Thursday June 18, 2026, that seeks to unilaterally overturn nearly three decades of federal integration policy. As NDY says tirelessly, people with disabilities want supports and services to live, not assistance to […]
Not Dead Yet (NDY) writes to express our strong opposition to the lawsuit Texas v. Kennedy and its goals. Texas and nine other states (Alaska, Florida, Indiana, Kansas, Louisiana, Missouri, Montana, and South Dakota) have decided to spend taxpayer dollars undermining people with disabilities’ right to community living. Members of the independent living movement founded […]
The National Council on Disability issued the following release on November 6, announcing the latest report in its bioethics series. Federal study finds certain health care cost-effectiveness measures discriminate, restrict access to lifesaving treatments for people with disabilities For Immediate Release […]
Last Thursday, Not Dead Yet was one of “over 70 individual patients and patient organizations” that joined the Partnership to Improve Patient Care (PIPC) in a letter to the Department of Health and Human Services (HHS), calling for recognition of us as stakeholders in the Better, Smarter, Healthier initiative and in the Health Care Payment Learning and Action Network. […]
The 24+ hours since I posted on the double euthanasia of two deaf men in Belgium has resulted in some developments, varied reactions, and some reflection on my own part. My apologies if this post seems a little scattered – a little like mental multi-colored pasta thrown against the wall – but sometimes that’s how […]
There’s an interesting new response to Bill Peace’s essay in the Hastings Center Report in which Bill described a very disturbing late-night visit by a physician while Bill was hospitalized for care and complications relating to a stage IV skin breakdown. An excerpt has been posted as a comment on Bill’s response to invited reactions […]
As of today, Bill Peace’s essay “Comfort Care as Denial of Personhood” is online – and accompanied by three commentaries available at the Hasting Center Bioethics Blog. Here’s what we wrote before about the experience at the center of Bill’s essay: Back in 2010, our friend, colleague and ally Bill Peace, experienced a long, expensive […]
This all started simply enough. On July 9, the New York Times published an essay by Dudley Clendinen titled The Good Short Life With A.L.S. In the essay, Clendinen, who has previously worked as a correspondent and as an editorial writer for the paper, shared his thoughts on living with A.L.S. – which he calls […]
I suspect that over the next few days we might see some first-time visitors to this blog – and many of them will be curious as to just what kind of factual information is out there about Kevorkian that is absent in just about all of the media coverage. Below is a non-exhaustive list of […]
As promised in yesterday’s blog posting, today I’m sharing the affidavit submitted by Nancy B. Alisberg, Managing Attorney at the Connecticut Office of Protection and Advocacy for Persons with Disabilities (OPA) in the OPA’s motion to intervene in Blick v. Division of Criminal Justice. Alisberg’s affidavit goes into detail about some of the actions she […]
