NDY’s comment letter can be summarized as follows: We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than […]
Not Dead Yet, the Center for Disability Rights, and 11 other NY based disability organizations, submitted public comments on the New York State Medicaid Delivery System Reform Incentive Payment Program (DSRIP) on May 28, 2014, alleging that one of the proposed projects would fund Medicaid providers to save money by steering people to choose death over […]
On December 5, 2013, NDY’s John Kelly talked about the Tim Bowers case during public comments he provided by telephone to the National Council on Disability. Bowers is the Indiana hunter who was injured in a fall and died the next day when he told doctors to stop life support. John requested the Council’s help […]
As folks who read this blog already know, the Institute of Medicine’s Transforming End-of-Life Care Committee sets aside a portion of its meeting agenda to receive public comments. At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input […]
As of today, Bill Peace’s essay “Comfort Care as Denial of Personhood” is online – and accompanied by three commentaries available at the Hasting Center Bioethics Blog. Here’s what we wrote before about the experience at the center of Bill’s essay: Back in 2010, our friend, colleague and ally Bill Peace, experienced a long, expensive […]
Much of the state level legislative activity concerning POLST (Physician Orders for Life-Sustaining Treatment) has been carried out under the general public’s radar. But when Governor Chris Christie vetoed the New Jersey POLST bill yesterday, it hit the news feed. According to NEWJERSEYNEWSROOM.COM and the Governor’s veto message – While noting the prospective benefits in […]
Last weekend, Thaddeus Pope posted a followup to an earlier item shared and discussed on his Medical Futility Blog. Let’s take it in order. Back in March of this year, Pope originally shared the news about the unexpected recovery of Kimberly McNeill of New Zealand, an 18-year-old who suffered severe injuries in a car crash […]
On Sunday (May 8, 2011), the Austin American-Statesman published an update of sorts on the continuing stalemate over the Texas “futile care statute,” which translates as a “win” for supporters of the status quo. It’s a fascinating article – for many reasons. But perhaps the most fascinating are the many contradictions contained in the article […]
There are many news sources for this, but here’s the news from UCBerkeley News giving a short account of the life of Ed Roberts and the legislative action that created an “Ed Roberts Day.” Here are the first two paragraphs from Wendy Edelstein’s “Ed Roberts, disability-rights leader and Cal alum, gets his own state day“: […]
This past week, news sources in Europe and the US have been telling the story of Richard Rudd, who was left with spinal cord injuries and in an apparent coma after a motorcycle accident. As medical staff and family prepared to disconnect Mr. Rudd’s ventilator, a final examination by one of his physicians held open […]
