Dear Mr. Clooney, We, the undersigned national disability rights organizations, urge you to use your platform to advance disability justice and to defend the rights of people with disabilities against the inherent discrimination and dangers of assisted suicide legislation. For the reasons set forth below, we urge you to reconsider the impact of your involvement. […]
COVID-19 continues to rage through America, but not many of us outside the media and disability rights and justice groups are talking about an overlooked population – residents of nursing facilities and institutions for disabled people, who are dying of COVID-19. To date, more than 51,000 residents and employees of nursing homes and long-term care […]
Thanks to the Partnership for Inclusive Disaster Strategies for alerting disability advocates to proposed federal rule changes that would make it easier to put disabled people of all ages into nursing “homes” and other facilities, as well as make it harder for them to move back out to the community. The deadline for comments is […]
NDY’s Director of Minority Outreach Anita Cameron is leading ADAPT’s organizing efforts for the reintroduction of the Disability Integration Act (DIA) in Congress on M.L. King’s Birthday, Tuesday, January 15th. Anita has been an ADAPT organizer and activist for decades and has the distinction of having been arrested for nonviolent civil disobedience for disability rights […]
[Editor’s note: After an all-day online conference related to brain injury healthcare, I learned the horrible and life threatening news of House passage of the new “healthcare” law, which is really the old law of no protection for all of us with pre-existing conditions, and those of us who need home and community based long […]
One of the issues that we have with The Conversation Project is that the online materials suggest that a nursing facility is the only alternative to being “independent”. (The notion seems to be to ask, “If you had to go to a nursing facility, wouldn’t you rather have an advance directive that declines life-sustaining treatment?”) […]
Monday, October 3, was opening day for the U.S. Supreme Court. The Court heard oral arguments in three consolidated cases: Douglas v. Independent Living Center of Southern California, Douglas v. California Pharmacists Assn. and Douglas v. Santa Rosa Memorial Hospital. In these cases, Medicaid recipients and providers are suing the state of California to stop […]
In transitioning to full time work for Not Dead Yet, I’m bringing my last fifteen years of independent living and health care advocacy experience. I’ve served on a number of boards and committees related to achieving universal health care, protecting and improving health care access for people with disabilities, and reversing the institutional bias built […]
I really should have posted this over the weekend, but got waylaid by the usual parade of mundane but demanding household tasks that tend to occupy that timeblock. On Saturday, September 19, ADAPT activists from around the country converged on Washington, DC for several days of political advocacy and direct action. Here’s how ADAPT’s September […]
After a few days away, I’m playing catch-up again. So I have a few blog entries to refer people to. There is some excellent writing happening in our community. First up is a post by Chris Hilderbrant. In the interest of full disclosure, Chris is the Director of Advocacy at the Center for Disability Rights […]
