Category Archives: medical discrimination

Belated Update on Wisconsin Case: ASAN Files Second Amicus Brief for NDY and 13 Other Disability Groups

[This announcement is from the Autistic Self Advocacy Network (ASAN) and originally appeared on Feb. 2, 2015.] On Monday January 26, the Autistic Self Advocacy Network, Not Dead Yet, and 13 other disability rights organizations filed a second amicus brief in a case defending the rights of people with disabilities to basic medical care. Disability … Continue reading Belated Update on Wisconsin Case: ASAN Files Second Amicus Brief for NDY and 13 Other Disability Groups

Last Day to Submit Input to IOM Committee on Approaching Death – Personal Story

Today, November 1st, is the last day to provide input to the Institute of Medicine’s Committee on Approaching Death via their online survey, the subject of a previous blog.  Yesterday I took the opportunity to submit the following personal story involving some disturbing communications from medical professionals a couple years ago when I had some … Continue reading Last Day to Submit Input to IOM Committee on Approaching Death – Personal Story

DREDF’s Marilyn Golden Provides High Powered Public Comments to IOM Transforming End-of-Life Care Committee

The second of six expected meetings of the Institute of Medicine Transforming End-of-Life Care Committee was held on May 29 at the Stanford University School of Medicine in Stanford, California.  The topics addressed by the Committee include health care and long term services and supports issues facing people with chronic conditions and disabilities who may … Continue reading DREDF’s Marilyn Golden Provides High Powered Public Comments to IOM Transforming End-of-Life Care Committee

Disability and Representation blog: “Amanda Baggs, The Pressure To Die, and the Case Against Assisted Suicide” by Rachel Cohen-Rottenberg

For about a week now, activists and advocates have been engaging in the fight to safeguard the health and safety of Amanda Baggs, one woman dealing with medical ignorance, apparent bigotry, and regular messages that her life isn’t one worth saving.  Even now, a positive outcome isn’t assured. (I direct blog readers to just peruse … Continue reading Disability and Representation blog: “Amanda Baggs, The Pressure To Die, and the Case Against Assisted Suicide” by Rachel Cohen-Rottenberg

More Updates on Amanda Baggs and Links to Other Bloggers

It’s been a few days since an update on Amanda Baggs and her struggle to get past medical discrimination and get appropriate medical treatment has been shared here.  The good news is that the news of her scheduled surgery was true and her feeding tube is now in place. Now the bad news: In “So … Continue reading More Updates on Amanda Baggs and Links to Other Bloggers