Category Archives: supported decision making

Lisa Blumberg: Support Grows for a Bill of Rights for People with Guardians

civil rights, Health care decision-making, Lisa Blumberg, medical decisionmaking, Our News & Commentary Blog, supported decision making, Surrogate Decisions & Guardianship, ,

Alexandra is a woman in her forties who has been described as developmentally disabled and has sometimes had problems managing her budget.  She cares about having a conventional appearance and her preference is for V-neck blouses. She unfortunately has early-stage breast cancer, but it could be treated in various ways. She could benefit from having … Continue reading Lisa Blumberg: Support Grows for a Bill of Rights for People with Guardians →

Lisa Blumberg: Getting Beyond Advance Medical Directives

advance directives, Conversation Project, DNR, Do-Not-Resuscitate, Dr. Ferdinando Mirarchi, end-of-life care, Health care decision-making, life-sustaining treatment, Lisa Blumberg, Our News & Commentary Blog, supported decision making, treatment withdrawal, , , ,

For years, advance medical directives, popularly known as living wills, have been promoted as giving people control over what happens to them at “end of life”, i.e., when they are in dire medical straits. (1)  It is hard to disagree with the concept. Certainly, people have the right to refuse treatment they don’t find helpful … Continue reading Lisa Blumberg: Getting Beyond Advance Medical Directives →

NDY Public Comment On Guardianship Urges More Rights Protections for Disabled & Elders

ageism, elder abuse, elder law, Our News & Commentary Blog, public comment, supported decision making, surrogate decision making, Surrogate Decisions & Guardianship, ,

One of the longest standing concerns of the disability rights movement is the misappropriation by others of our rights to make our own decisions. This problem touches every facet of life and is a major factor in the continuing incarceration of older and disabled people in nursing facilities and other institutions for the “crime” of … Continue reading NDY Public Comment On Guardianship Urges More Rights Protections for Disabled & Elders →

Sarah Cavar: ASAN’s Invitational Summit on Supported Decision-Making

ASAN, Autistic Self-Advocacy Network, Health care decision-making, long term services and supports, Our News & Commentary Blog, Sarah Cavar, supported decision making, Surrogate Decisions & Guardianship, ,

A Summary of ASAN’s Invitational Summit on Supported Decision-Making and Transition to the Community: Conclusions and Recommendations. Introduction: The Autistic Self-Advocacy Network (ASAN) recently released a document stating the conclusions from their “Invitational Summit on Supported Decision-Making and Transition to the Community”. This was a summit that included allies and self-advocates to disability justice, and … Continue reading Sarah Cavar: ASAN’s Invitational Summit on Supported Decision-Making →