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Category: Surrogate Decisions & Guardianship

Lisa Blumberg: Support Grows for a Bill of Rights for People with Guardians

Alexandra is a woman in her forties who has been described as developmentally disabled and has sometimes had problems managing her budget.  She cares about having a conventional appearance and her preference is for V-neck blouses. She unfortunately has early-stage breast cancer, but it could be treated in various ways. She could benefit from having […]

Sarah Cavar: ASAN’s Invitational Summit on Supported Decision-Making

A Summary of ASAN’s Invitational Summit on Supported Decision-Making and Transition to the Community: Conclusions and Recommendations. Introduction: The Autistic Self-Advocacy Network (ASAN) recently released a document stating the conclusions from their “Invitational Summit on Supported Decision-Making and Transition to the Community”. This was a summit that included allies and self-advocates to disability justice, and […]

John Oliver Takes on Guardianship Abuse

For anyone unfamiliar with the show, HBO’s “Last Week Tonight with John Oliver” features in-depth, dark – and often viciously humorous takes on important news. The last show shared the often dark and abusive sides of guardianship in the USA: This video is captioned. Three things about the captioning: The captioning is mostly accurate; John […]

NDY Submits Comments On Adult Protective Services Guidelines

The Administration for Community Living (part of the Administration on Aging within the U.S. Dept. of Health & Human Services) is seeking comments on draft voluntary consensus guidelines for Adult Protective Services.  The original deadline for comments was October 30, but it’s been extended to November 13.  More information and a portal for submitting online comments […]

National Council on Disability Will Consider Proposal to Address Health Care Decisions Policies that Threaten the Lives of People With Disabilities

The National Council on Disability met on May 6th at the Ed Roberts Campus in San Francisco.  This is a presidentially appointed Council that advises the Administration on disability policy.  The Council always offers opportunities for public comment, and NDY has been asking NCD to help lead efforts to address abuses in health care decisions […]

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

As folks who read this blog already know, the Institute of Medicine’s Transforming End-of-Life Care Committee sets aside a portion of its meeting agenda to receive public comments.  At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input […]