Not Dead Yet logo that links to the homepage of the website.

Category: update

Announcement: In Memoriam: John Bryan Kelly (February 26, 1958 – November 14, 2025)

  Our incomparable disability rights champion, beloved colleague and friend. It is with profound sadness that we announce the passing of NDY’s singularly dear colleague and incomparable disability rights champion, John Bryan Kelly, who passed away peacefully in Boston, this past Friday, November 14, 2025, at the age of 67.  In spite of battling an […]

Update on Amelia (Philadelphia Transplant Denial) With Welcome News

I’m happy to share an update on a story we covered earlier this year – about a young girl – Amelia – who has Wolf-Hirschhorn syndrome.  Back in January, her mother wrote about an awful meeting at the Children’s Hospital of Philadelphia about Amelia’s failing kidneys.  They were told by the transplant surgeon that her […]

Catching Up – Followup on Singer, Etc.

Last week, I was on vacation and was fairly successful at staying away from work stuff, except for what was necessary in getting the NY Times Letter out. Since the time it was made public, I’ve been contacted by a lot of people – through the blog, email and facebook – wanting to get added […]

Update on Wagman Op-Ed — Concord Monitor picks it up

I hope this is the end of it, but today’s edition of the Concord Monitor carried Wagman’s essay, using the gentler, but less accurate title of “It’s time to pull out the tubes and allow my father to die.” FYI – Unlike the LA Times, the Monitor provides a “comments” section for this op-ed. Nothing […]

Update: Haleigh Poutre and the Strange Priorities of Massachusetts Legislators

Wesley Smith has an update on Haleigh Poutre, who apparently – and hopefully – will be spared having to testify in the trial of her stepfather, Jason Strickland. Haleigh Poutre narrowly escaped the death planned for her by medical professionals at Baystate Medical Center and publicly-appointed guardians from Massachussets DSS. These professionals all signed off […]

NDY is back — and in a new home

I am happy to let readers know that Not Dead Yet is alive and well. Our hiatus wasn’t due to any major crises or problems – just the many minor ones associated with moving. After eleven years based in the Chicago area, Not Dead Yet has moved its headquarters to Rochester, NY. Specifically, we’re now […]