Not Dead Yet Public Comment on Revised Proposed Donation After Cardiac/Circulatory Death (DCD) Protocols

…rather than substantively addressed. We urge both the Ethics Committee and the OPTN Board to refrain from acting on the pending proposals before you have carried out your duty to protect the interests of potential organ donors as well as safeguard public trust in the integrity of the organ procurement and transplantation system. Please contact me with any questions you may have and, above all, create a system that all of us can trust to value our…

Full Written Public Comment: Disability Related Concerns About POLST

…ST) Form, November 14, 2012, http://www.medsocdel.org/Portals/1/In%20the%20News/MOLST%20Form%20Letter%20111412.pdf [7] POLST: Honoring Patients’ Wishes for Treatment, Part 3: Having the POLST Conversation, University of California Television, Coming of Age Lecture Series, UC Davis Health System Center for Healthy Aging, http://www.medsocdel.org/Portals/1/In%20the%20News/MOLST%20Form%20Letter%20111412.pdf [8] American Medical Association Opinion 2….

Board of Directors

…was on the Board of Directors. He has written op-ed columns for his local newspaper, the Times Union, and remains a tireless advocate for the rights of people with disabilities. Emily Wolinsky Emily Wolinsky serves as President and Executive Director of NMD United, a peer-led and run non-profit organization that connects adults with neuromuscular disabilities (NMDs) to Independent Living resources. As part of her work for NMD United, in 2015-2016…

Not Dead Yet’s direct actions and campaigns

…ns and media/public education campaigns to bring public attention to the struggle to stop legalization of assisted suicide, involuntary denial of life sustaining treatment and to advocate for equal protection of the law for old, ill and disabled people. Disability Activists Crash Pro-Assisted Suicide Press Conference (04/27/22) Activists Protest Disability Snuff Film Me Before You! (2016) NDY Protest of World Federation of Right to Die Societies (…

A Watershed Moment: NIH Designates Disabled People as a Health Disparity Population

…across patient populations, builds better health care systems, and makes a world that is a better fit for all.” The action by the NIH and the updating of the 504 regulations to prohibit discrimination based on disability by health care providers receiving federal funds are victories for disability activists. Nonetheless, we still face threats. The medical system continues to be inefficient, fragmented and profit driven. The “better dead than disab…