NDY Files Public Comment With CMS Re Equity In Organ Transplantation and Donation

…lity as well as for people who use feeding tubes or breathing assistance, i.e. life support in their daily lives. People who have cognitive disabilities or presumed cognitive disabilities are also subject to such pressures. We are far from a level playing field where people can freely make treatment choices. We urge CMS to do all that it can to ensure that individuals and families can make informed decisions about whether or not to withdraw life s…

Time Magazine Article Misrepresents Final Exit Network and Who They “Help”

…ormed me was forwarded to an appropriate staffer. I’ve made slight edits (e.g. omitting the final exit network URL here), but this is basically what was sent: Dear Ms. _____, I will be publishing this critique on my blog this afternoon. The traffic is pretty heavy these days, considering the subject matter. I would sincerely appreciate being able to include a response from someone at Time in what I write. My blog is at http://notdeadyetnewscomment…

Not Dead Yet Comment On Draft COVID-19 Vaccine Allocation Framework

…ld be formally extended and further developments of this framework by the U.S. Department of Health and Human Services must provide a more genuine, realistic, fair and widely publicized opportunity for public input. Not Dead Yet’s comment will address two issues: a) the Phase 1b identification of “comorbid and underlying conditions that put individuals at a significantly higher risk of severe COVID-19 disease or death” and b) the failure to includ…

From Stephen Mendelsohn: More Media, Etc. From Connecticut Hearings on Assisted Suicide

…his work and his testimony (see below) at the Hearing:   CT Mirror: http://www.ctmirror.org/story/19490/end-life-bill-brings-comfort-some-fears-vulnerability-others Fair and balanced, yet the comparison Arielle Levin Becker makes between Sara Myers and Cathy Ludlum is highly revealing (note my comment below the story). New Haven Register (my heads-up e-mailing got us this one, after an earlier story falsely claimed that HB 6645 was full of safegua…

NDY Public Comment on HHS/OCR Proposed Section 504 Healthcare Regulations

November 10, 2023 The Honorable Xavier Becerra Secretary U.S. Department of Health and Human Services, Office for Civil Rights Attention: Disability NPRM, RIN 0945–AA15 Hubert H. Humphrey Building, Room 509F 200 Independence Avenue SW Washington, DC 20201 RE: DISCRIMINATION ON THE BIAS OF DISABILITY IN HEALTH AND HUMAN SERVICES PROGRAMS OR ACTIVITIES – PROPOSED RULE DOCKET NUMBER HHS-OCR-2023-0013 Dear Secretary Becerra: Not Dead Yet, a national…