Bloggers Remember Paul Longmore

…article in today’s edition of BeyondChron – the Alternative San Francisco online daily. Bess, at The Right to Design, shares a long remembrance of Paul. CDCAN – California Disability Community Action Network issued a short press release. Ben Mattlin shares some thoughts and dedicates part 14 of “Miracle Boy” to Paul Longmore. Martina has written “Memorium” – a poem for Paul Longmore on the Breaks in the Verse blog. Beth Haller at Media dis&dat ha…

Another loss: Barbara Knowlen 1941-2010

…en, check out: When Billy Broke His Head – and other tales of wonder: Award-winning documentary by Billy Golfus, which Golfus says “ain’t exactly your inspirational cripple story.” Maximizing Your Benefits was published in 2001 in New Mobility. Finally, Mouth Magazine has a story by Barb Knowlen online that touches on concerns related to Not Dead Yet. The story talks about the fears that many disabled people have about doctors – who don’t value th…

John Kelly’s Testimony Before the New Jersey Health and Senior Services Committee in Opposition to A2270

…who will be impacted by this piece of bad social policy. Invidious quality-of-life judgments have no place in social policy. Reject this bill and the discrimination it promotes. Thank you very much. John B. Kelly Links to Sources: Associated Press, “Bend Couple Goes to Trial on Fraud Charges,” Ventura County Star, January 14, 2013 Boston.com, “Question 2: Physician-Assisted Suicide.” Interactive Map Ira Byock, “Vermont: Testimony of Ira Byock, MD…

John Kelly’s Testimony Before the Connecticut Public Health Committee in Opposition to HB 5326

…who will be impacted by this piece of bad social policy. Invidious quality-of-life judgments have no place in social policy. Reject this bill and the discrimination it promotes. Thank you very much. Links to Sources:   Associated Press, “Bend Couple Goes to Trial on Fraud Charges,” Ventura County Star, January 14, 2013 http://tinyurl.com/lwh7z4p Boston.com, “Question 2: Physician-Assisted Suicide.” Interactive Map http://tinyurl.com/a9pgk6n Ira B…

Disabilityscoop fails to get the real scoop – Disability, organ transplantation and the HHS

…o bear on families by discussing organ donation when a loved one is on life-support. These situations involve newly-brain injured people of any age (and those under the age of 21 are considered to be developmentally disabled) and people with disabilities of any age dependent on technology to live. Prior to publication, Ari Ne’eman, head of the Autistic Self Advocacy Network, put Disability Scoop in touch with Not Dead Yet concerning the organ proc…