…ere are twenty people on this board and 18 are attorneys. Sixteen from our examination appear to come from the corporate world. None of the 20 people really self-identified as disabled, although we know at least 2 of them on the board are probably disabled, but nobody even identified as disabled. When I see rosters of other disability-oriented groups, people are proud to say they’re disabled and I’m here and that’s one of the reasons why I’m here….
…ant because not all of what the FEN website claims is true. Take this, for example, from the latest article: A Final Exit Medical Committee reviews information, and if approved, an “Exit Guide” is assigned who provides detailed information how a person may purchase equipment and take steps to end their own life, according to the website.“The Network never supplies equipment,” the website states.That right there – about FEN never supplying equipmen…
…shirt! Not sponsored, I just love shouting out disabled artists 🙂 https://www.teepublic.com/user/dissentclothing Transcript Hello and welcome back to the Not Dead Yet vlog! My name is Jules Good, I use they/them pronouns, and I’m the Assistant Director and Policy Analyst at Not Dead Yet. [VISUAL DESCRIPTION]. Today we’re talking about one of the most important issues facing the disabled community right now: access to long term services and suppor…
…e, and things were tough for her. After about 6 months, I convinced her to come to Pennsylvania, and live with me. I wanted to get her the best help I could, and I did! I found her doctors and therapists. She went on new medications. Some days were better than others. Lisa told me on more than one occasion that she was very fearful of death. That was the reason she was still here. She stayed in Pa for about two years, and then did what we all thou…
…ite under “Public Policy” activities. The Conversation Project provides an example of how common fears and prejudices about life with disability are used to steer people to decline healthcare and choose death, but it’s far from the only example. Those who push these ideas and approaches are usually well meaning, but are ill informed about disability in all the typical ways. Nevertheless, when New York Medicaid officials openly link this objectiona…
