Fighting “Better Dead Than Disabled” – NDY Year In Review

…angers of these bills to disabled people who require assistance to eat. Non-Discrimination in Healthcare: NDY worked with DREDF and others on communications with the federal HHS Office for Civil Rights to advocate for improved policies on non-discrimination in organ transplant eligibility, futility and suicide prevention. NDY also filed two formal public comments during the reporting period: NDY Public Comment On Federal Healthcare Interim Final R…

Press Release: NY Disability Advocates Testify Against Assisted Suicide Bill

…s legal. Oregon released data from 2017 which showed that the top three end-of-life concerns cited by Oregon patients requesting suicide pills had nothing to do with physical pain and suffering. These concerns were: decreasing ability to participate in enjoyable activities; loss of autonomy; and loss of dignity. The disability community strongly opposes the belief that requiring the assistance of another individual for activities of daily living,…

Not Dead Yet’s Policy Work

…Kelly’s Response to Institute of Medicine’s Committee on Approaching Death Online Survey (Nov. 1, 2013) Diane Coleman’s Response to Institute of Medicine’s Committee on Approaching Death Online Survey (Oct. 31, 2013) Not Dead Yet Public Comment on Revised Proposed Donation After Cardiac/Circulatory Death (DCD) Protocols (Oct. 17, 2013) Not Dead Yet’s Public Comment to U.S. Dept. of Health and Human Services on Affordable Care Act’s Nondiscriminati…

Not Dead Yet, et al. v. Andrew Cuomo, Governor, et al. Class Action Complaint

…ker, April 11, 2020, https://www.newyorker.com/magazine/2020/04/20/who-gets-a-ventilator 6 Case 1:20-cv-04819 Document 1 Filed 10/07/20 Page 7 of 28 PageID #: 7 https://www.newyorker.com/magazine/2020/04/20/who-gets-a-ventilator (last visited Oct. 6, 2020). Ventilator Allocation Protocol 37. The Guidelines set forth a process for an acute medical facility to follow to determine who will receive a ventilator when there is a shortage of ventilators…

Karen McCulloh, Nat’l. Org. of Nurses with Disabilities – Advisor: Basic Life Support

…st nursing schools require students to receive CPR training, and have an up-to-date BLS card. In order to address Employer and nursing school policies, NOND reached out to the American Heart Association (AHA) National Center that provides CPR training across the nation, as well as internationally, and requested AHA to collaborate as a “thought leader” with NOND. NOND Directors believed that collaboration with AHA could result in the development of…