Breaking News – Swiss Euthanasia Organization Being Investigated for Possible Profiteering

This just coming out of Switzerland, by way of The Telegraph in the U.K.:

Dignitas, which is meant to be a non-profit organisation, is being forced to open its accounts to prosecutors in Switzerland and disclose how much money it is receiving from its controversial business of assisting suicide.

The founder of the group is reported to have become a millionaire by helping at least 870 terminally ill people – an estimated 100 of whom were British – die. It is said to have taken as much as £61,000 from one woman, 10 times its usual fee.

This isn’t the first time profit motive has been tied to the “compassionate” acts of serial “mercy killers.” Filmmaker Jon Ronson followed George Exoo for a documentary that aired in the U.K in the first part of 2008. Exoo had recently taken on a “helper” and taught her the ins and outs of connecting with people and helping them kill themselves.

In an article from The Guardian, Ronson relates some information Susan (the pseudonym Ronson gives here) tells him while they’re alone:

Exoo drove off to do some real estate business and I was left alone with Susan. We sat on her porch. And she said something extraordinary. She said that unbeknown to Exoo she had set up her own suicide business and was willing to help practically anyone if the price was right.

“I see this as a business,” she said. “George sees it as a calling. There’s a big difference there. For me it’s no cash, no help.” She said her price was approximately $7,000.

“You’re bound to get it wrong, aren’t you?” I said. “And help someone who shouldn’t be helped.”

Susan shrugged. “Probably, at some point, yes,” she said.

I guess that there are folks (Ronson was one of them) who are shocked to find such blatant bottomfeeders as “Susan” in the euthanasia movement. That’s just because they don’t know the movement well enough.

Back to Switzerland and the current story on Dignitas, there’s this “bring it on” tidbit from the head of the organization – Ludwig Minelli:

“If the state prosecution feels I’m making myself rich, they should start legal proceedings.”

Minelli probably doesn’t follow news in the U.S., or he might take a more cautious tone. The day before being hauled into court to face federal charges of corruption, Illinois Governor Rod Blagojevich invited anyone to listen in on his private conversations any time at all – he had nothing to hide.

Turns out the feds had been listening for quite awhile and the good Governor should have left some things he said unspoken.

I look forward to Ludwig Minelli facing the same consequences of Hubris in the near future. –Stephen Drake

Jury Acquits Transplant Surgeon in Ruben Navarro Death

Readers of this blog will be familiar with the depressing and alarming story of Ruben Navarro, who died hours after a botched attempt and a “controlled death” and organ harvesting. This occurred under a protocol still not used widely, but on the increase – labeled “donation by cardiac death (DCD).” This appears to be a recent replacement for the term “non heart-beating donation.”

Hootan Roozrokh was charged with felony dependent adult abuse for his role in ordering the administration of massive doses of painkillers and sedatives when Ruben Navarro’s heart kept beating after being removed from a ventilator. As a transplant surgeon, Roozrokh shouldn’t have been in the same room with Navarro until after he’d been declared dead.

Here’s the first few paragraphs of a story on the trial by Leslie Parilla at Sanluisobispo.com:

A San Luis Obispo jury on Thursday acquitted a transplant surgeon of dependent adult abuse in the first criminal case of its kind in the nation.

A jury of nine men and three women decided Dr. Hootan Roozrokh was not guilty beyond a reasonable doubt of felony dependent adult abuse in connection with an attempted organ removal on Feb. 3, 2006, at Sierra Vista Regional Medical Center in San Luis Obispo. Roozrokh was accused of endangering the health of 25-year-old Ruben Navarro by attempting to hasten his death during the failed procedure by ordering large amounts of painkillers.

Navarro died, but not in time for his organs to be harvested; but his death was not in question. The issue was whether the man who suffered from a debilitating neurological condition was given drugs to speed up his death.

Never before has a transplant surgeon in the United States been criminally accused of trying to hasten a patient’s death in connection with an organ removal. Transplant experts across the nation feared the case would discourage potential organ donors and transplant surgeons. Roozrokh’s attorney, M. Gerald Schwartz-bach, said the case already has had that effect.

“It was bigger than me,” Roozrokh said after the court hearing. “And they recognized that.”

Hopefully, the jury decided this case on the basis of “reasonable doubt,” but there are other factors, hinted at in the paragraphs above, that give some cause for concern.

Was the jury worried about a “guilty” verdict on potential organ donations due to the negative publicity? This was certainly a major theme broadcast by transplant advocates and organizational reps over the course of the case.

In fact, it’s clear that the medical profession is relieved at hearing this verdict:

Dr. Brian Liang, a law professor at California Western Law School who specializes in health law and policy, said Thursday that many in the transplant community were relieved to learn of the verdict.

“It’s been a big deal,” Liang said about the case. “I think people, certainly in the medical community, are very happy this particular case is not being seen as the typical situation, and that medical providers are actually very sensitive to how ethically they’re suppose to behave with respect to procuring organs.”

Added Liang: “And people on the other side of things see we don’t have these physician vultures standing over somebody with their scalpels out waiting for the flat-line to happen.”

Liang said the case has already done what the jury wrote about, revising the way rare cardiac-death donations are done.

“The policies were not there and the policies were generally not well defined,” Liang said. “The jury really saw that.” The United Network for Organ Sharing and others have strengthened standards for the procedures since the case was filed, Liang said.

These are nice and vaguely reassuring words from Liang, but short on details. How have policies been defined or redefined? More importantly, what guarantees are there in regard to how policies will be implemented?

In the Navarro disaster, some longstanding policies were violated, with the acquiscence of a room full of medical professionals.

That brings me to another concern in regard to influence on the jury. It’s possible they thought Roozrokh was being unfairly singled out for prosecution. No other medical professionals – nurses who administered the questionable medications, the attending physician, etc. – was charged with a crime. In fact, according to earlier press accounts, they escaped professional sanctions of any kind.

In Barack Obama’s book “Dreams From My Father,” his aunt, warning him of the rush of relations in Kenya that might want something from him, says “if everyone is family, then no one is.”

Similarly, in a situation like the Ruben Navarro case, where every single person in the room shares a degree of guilt, the thinking might go something like this – “if everyone is guilty, then no one is.”

In an interesting article I came across while reading for this entry, I found this fascinating article by Laurel Fletcher and Harvey Weinstein in Human Rights Quarterly (pdf). Here’s an interesting excerpt on the “if everyone is guilty” topic:

Criminal prosecutions serve to highlight the moral claim that individuals and not groups are responsible foracts of violence. The stated claim is that holding individuals accountable for these acts alleviates collective guilt by differentiating between the perpetrators and innocent bystanders, thus promoting reconciliation. In the absence of individual accountability, the fear is that the entire group ofthose in whose name atrocities were committed will be deemed collectively accountable. Dwight MacDonald conceives of collective guilt as “a Hegelian statist approach in which individuals lack will, thought, and conscience except as these are united in the ‘organic totality’ of the state.” As a result, proponents of this view assert that since everyone is guilty then no one is. Consequently collective guilt absolves everyone of responsibility for past wrongdoing. (emphasis added.)

I plan to read this article more carefully when I get back to work next week, it has a lot of interesting information on the environmental and social factors that increase the risk that people will violate their own ethical standards and the law itself in ways they might not if acting on their own.

As far as I know, the research regarding obedience and group dynamics has never been applied to people in a medical setting. Maybe the Navarro case is an indicator that this is an area of research needs to be undertaken – to improve patient safety and quality of care.

That’s not to much to ask, is it? –Stephen Drake

Catching Up – Montana Judge Rules Assisted Suicide a Constitutional Right

Earlier this month, a Montana District Court Judge ruled that “terminally ill” patients have a right to assisted suicide under that state’s constitution. Judge Dorothy McCarter dismissed the arguments that this was a legislative matter, and suggested that “terminally ill” and “competent” can be easily defined in terms of figuring out how to implement this “right.”

The Attorney General in Montana has asked Judge McCarter to put her ruling on hold while his office prepares and files a formal appeal to the ruling with the Montana Supreme Court.

Not Dead Yet intends to file an amicus brief in support of the expected appeal of the ruling by Judge McCarter. The legal team working on the brief – so far – is led by Steve Gold, with assistance from Robin Stephens.

We’re working with ADAPT/NDY activists in Montana on this – with Bob Liston and Marsha Katz playing leading roles.

As in the past, an amicus brief from NDY can be expected to present arguments that won’t be covered by other players.

Also, as in the past, we’ll be looking for sign-ons as the brief is readied and the time for filing nears.

More as this story develops. –Stephen Drake

Something Truly Vile – Please Add Your Voice at ICAD

Occasionally, this blog addresses issues that aren’t directly related to the NDY mainstays of life and death issues facing people with disabilities.

This is one of those times. As Dick Sobsey wrote said in an email to me, this news out of South Korea fits in the “truly vile” category. That means it calls for attention and action.

Briefly, four men have been convicted of repeatedly raping a sixteen-year old with developmental disabilities. The convicted are three of her uncles and her grandfather. News reports suggest the sexual assaults started when the girl was nine years old.

The four men have all been given suspended sentences.

But that isn’t the worst of it.

The judge’s rationale for giving them suspended sentences is that they’ll be needed to continue to provide care for the girl.

In case my wording wasn’t clear, the men are to be free to go home and continue to provide the “support” they’ve given this girl in the past.

The good news is that thousands of Koreans have responded with outrage and calls to impeach the judge.

Dick Sobsey at ICAD is trying to add a little international heat by having readers register their own feelings in a poll on the ICAD blog.

Please go there now and register your opinion on this issue – and read the links on the blog for more comprehensive discussion and news coverage. –Stephen Drake

Denver Post Article Blames “Autism” for Parents Killing Kids – Dick Sobsey Responds

Yesterday, the Denver Post published a truly horrible article by Nancy Lofholm titled Autism’s terrible toll: Parents risk hitting a “breaking point.”

In the context of this article “hitting a breaking point” means “murdering your child.” Your autistic child:

Jacob Grabe, 13, could sense a storm coming several days out. He would get agitated and make strange noises. Silverware bothered him. He could eat only from plastic forks and spoons. He breezed through complicated algebra but struggled with basic division.

Nearly three months ago, when his father, Allen, allegedly shot and killed him while he was sleeping, Jacob had been exhibiting these and many other symptoms of the mysterious disorder autism for most of his short life.

He had great difficulty making friends. He had trouble controlling outbursts. He had been shuffled from school to school. He had, in recent years, made some improvements with medications. But there is no cure for autism.

Friends of the family say Jacob’s father feared his son would never be able to live a normal life.

So Jacob became another statistic in a sad, pressure-cooker reality for families with autistic children.

I’ll be honest. I have trouble thinking straight when I read a vile “blame the victims” story like this. You’d think I’d be used to them by now.

(As added insult, btw, Lofholm lists Katie McCarron’s murder as one of several examples of murders that – I guess – we are supposed to attribute to the toll autism takes on families.)

Thankfully, Dick Sobsey is someone who can pull himself together better than I can, but even he had to calm down a bit before posting on this article. As usual, Dick is the best person I know at analyzing and deconstructing this kind of garbage. Unfortunately, he’s had a lot of practice.

So, please go read Dick Sobsey’s posts on this vile article on the ICAD blog:

Murder and Social Endorsement Part 1

Murder and Social Endorsement Part II