Disability Activists Protest Holding Paralympic Torch Ceremony At Site of Disability Massacre

In 2016, nineteen people with disabilities were brutally murdered by a former employee of a residential facility in Sagamihara, Japan. NDY reported on this Hate Crime: A killing rampage targets disabled people and on an ONLINE VIGIL FOR THE MURDERED DISABLED PEOPLE OF SAGAMIHARA. We also wrote a Statement on the First Anniversary of the Sagamihara Murders in support of those holding an event in remembrance of the lives lost.

Disability activists in Japan are now protesting a decision to hold the Paralympic Torch ceremony at the site of this horrific massacre, an institution which symbolizes the segregation and dehumanization of people with disabilities. Their Statement protesting this decision is below.


Independent Living Center Ring Ring
President Etsuko Nakao

We are a disability rights organization advocating for community living no matter how severe the disabilities are.  We achieve Independent Living through 24-hour personal assistance support and we have been working to raise awareness about the existence of persons with disabilities.

According to news reports on March 21, Kanagawa Prefecture, Sagamihara-City, and Kanagawa Kyodokai have made decision to bring a flame lightening ceremony of the 2020 Tokyo Paralympic Games to an institution “Yamayuri-en.”

We have lost our words by learning such horrible news.

Furthermore, knowing that they are claiming that “Yamayuri-en to become the origin of Inclusive Society” – we have nothing but deep indignation about this idea.

Even the media seem to be praising this whole concept by the way they are reporting.

This is a statement of protest by people with disabilities against the violation of human rights and outrageous act.

“Yamayuri-en” is a segregated institution that held more than 150 people with disabilities under very poor conditions.  It is a very place that on July 26, 2016 –  19 people with intellectual disabilities were killed and 24 people with intellectual disabilities and 2 staff were injured by an ex-staff.

This worst murder case since the end of World War II horrified people with disabilities around the world and revealed serious discrimination.

Has our society geared by and for the non-disabled already forgot that massacre?

A media report says that “The torch ceremony will be held at “Yamayuri-en”to demonstrate both nationally and internationally the strong determination for the inclusive society.” However, institutionalization is totally opposite of the inclusive society and they are the very place that segregates and denies the existence of people with disabilities.

There are abuse against residents with disabilities at Yamayuri-en before and even after the murder case.

People with disabilities are controlled and deprived of their dignity and human rights in a “detention camp” which can hardly be called a place of living.

How can such a place be the origin of the inclusive society?

This false way of demonstrating the will for the inclusive society is not only an insult to people with disability in Japan, but also leads to international recognition of Japan as a state which violates human rights, as the UN Convention for the Rights of Persons with Disabilities (UNCRPD) clearly states that institutionalization is a form of discrimination against people with disabilities.

No matter how openly operated to the community, the institutions are nothing but institutions as long as it locks up group of people with disabilities.

There are no persons with disabilities who is willing to be admitted in the institutions.

Those who have been killed at Yamayuri-en, their lives were taken instantly on the ground that “people with disabilities have no value to live.”

This case should be recognized as a genocide based on hatred against us, people with disabilities.

After the incident, however, Japan’s Prime Minister said nothing and took no action as a nation to confront with this genocide.

It brings us intense anger that, now again, even the death of people with disabilities are being dominated and used by the culture of the non-disabled and by the nation.

What is “Inclusive Society”, really?

Have you ever once heard the voice of persons with disabilities?

It is simply not possible to realize an “inclusive society” only by non-disabled individuals.

Therefore, we strongly protest the lightning ceremony of the Paralympic Games at “Yamayuri-en” and once again express that, with our very existence as people with disabilities, we confront the idea of eugenics.

Second Thoughts CT Protests Conflation of Assisted Suicide and Abortion Issues

In response to a rally sponsored by the Connecticut Catholic Public Affairs Conference, Second Thoughts Connecticut held a counter protest objecting to the Catholic group’s linking of support for pregnancy care centers with opposition to assisted suicide.

According to Second Thoughts CT’s press release:

Stephen Mendelsohn, a member of Second Thoughts Connecticut, said, “By mixing opposition to assisted suicide with support for pregnancy care centers, the Connecticut Catholic Conference undercuts our message.”  He further asserted, “It sabotages our ability to reach progressive legislators with our perspective that assisted suicide is lethal disability discrimination and a deadly mix with a broken, cost cutting healthcare system.  Their misguided and ineffective tactics play into proponents’ arguments, making it more likely that assisted suicide legislation will pass.”

The protest garnered local coverage in the Hartford Courant:

Split over abortion divides Catholic Church and disability rights activists in right-to-die fight in Connecticut legislature. Groups will hold separate rallies Wednesday (Hartford Courant, 04/07/21)

Photos from the protest (photo credits to Kathy Flaherty) and the full press release are below.

Second Thoughts CT member Stephen Mendelsohn holds displaying cartoon of stairs to suicide prevention and a ramp to assisted suicide
Second Thoughts CT member Stephen Mendelsohn holds displaying cartoon of stairs to suicide prevention and a ramp to assisted suicide
Second Thoughts CT member Joan Cavanagh holds "Pro-Choice/Anti-Assisted Suicide" sign near protesters in wheelchairs
Second Thoughts CT member Joan Cavanagh holds “Pro-Choice/Anti-Assisted Suicide” sign near protesters in wheelchairs
Second Thoughts CT protesters hold banner stating "Anti-Assisted Suicide" does not equal "Anti-Abortion"
Second Thoughts CT protesters hold banner stating “Anti-Assisted Suicide” does not equal “Anti-Abortion”

FOR IMMEDIATE RELEASE

Contact:                                                                   

Cathy Ludlum                         860-649-7110                               cathyludlum@cox.net
Stephen Mendelsohn              860-827-8003 (best after 5:30)     smendelsohn5845@att.net

Second Thoughts Connecticut

Facebook: https://www.facebook.com/SecondThoughtsConnecticut
Twitter:     https://twitter.com/2ndThoughtsCT

Second Thoughts Connecticut Holds Counter Protest to
Rally Sponsored by the Connecticut Catholic Conference

April 6, 2021 (Manchester, CT) – On Wednesday, April 7, 2021, Second Thoughts Connecticut will hold a counter protest against the Freedom to Live Rally organized by the Connecticut Catholic Public Affairs Conference.  Starting at 6:30 PM, the counter protest will take place in Minuteman Park, 300 Capitol Avenue, Hartford, CT, in front of The Armory and across the street from the Legislative Office Building.

Second Thoughts Connecticut, a grassroots disability rights organization opposed to the legalization of physician assisted suicide, objects to the Church’s rally for many reasons.

Stephen Mendelsohn, a member of Second Thoughts Connecticut, said, “By mixing opposition to assisted suicide with support for pregnancy care centers, the Connecticut Catholic Conference undercuts our message.”  He further asserted, “It sabotages our ability to reach progressive legislators with our perspective that assisted suicide is lethal disability discrimination and a deadly mix with a broken, cost cutting healthcare system.  Their misguided and ineffective tactics play into proponents’ arguments, making it more likely that assisted suicide legislation will pass.”

 Second Thoughts Connecticut member, Cathy Ludlum, stated, “Opposition to assisted suicide comes from many different directions.  It is not limited to religious people, and not only the Catholic Church.  Proponents of assisted suicide frequently attribute all opposition to the Church.”  She continued, “Linking opposition with a powerful institutional force silences the effective voices from the disability-rights community.”

From its founding, Second Thoughts Connecticut has maintained a strict policy that prevents the organization from getting involved with issues other than assisted suicide and a few closely related disability-rights issues.  Members represent a broad spectrum of political beliefs.

Sporting a banner that says ANTI-ASSISTED SUICIDE ANTI-ABORTION, members of Second Thoughts Connecticut will make it clear that opposition to assisted suicide has nothing to do with an individual’s views on abortion.

Joan Cavanagh of Second Thoughts Connecticut, said, “I am strongly pro-choice.  I have spent a lot of time working against assisted suicide, and I resent that the Church would mix these  issues together.  It makes it appear that everyone who opposes assisted suicide is against reproductive rights, which is obviously untrue.”  She added, “I will be holding my personal sign that says I am pro-choice, but this does not reflect the position of Second Thoughts Connecticut as an organization, which deliberately does not take a stand on that issue either way.”

Second Thoughts Connecticut member, Kathy Flaherty, asserted, “The motto of the disability community is ‘Nothing About Us Without Us.’  The Connecticut Catholic Conference organized their rally without consulting the people who have the most to lose: those of us with disabilities.  In different ways, both Compassion & Choices and the Catholic Church continuously disregard and disrespect people with disabilities representing ourselves.  Our lives must not be used as pawns, especially during a still-raging pandemic.”

Joan Cavanagh: State needs health care, not “death with dignity”

[Published in the CTPost on April 1, 2021, and New Haven Register April 3.]

State needs health care, not “death with dignity”

Anyone who has been with loved ones facing serious, painful illness will empathize deeply with the testimonies in Ed Stannard’s Sunday, March 21 article. I have. And I do.

But as an anti-war, anti-death penalty, pro-choice, human rights advocate who has been compelled to fight attempts by the medical system to restrict and withhold treatment, I also contend that there is a much larger picture to be considered. As a society, we must make decisions to protect the lives of the most vulnerable among us, not place them in further danger. The relevance of these considerations is repeatedly ignored or denied by the proponents of bills such as HB 6425, currently before the Connecticut state Legislature in another attempt to make it legal for doctors to prescribe lethal drugs for their patients.

Specific provisions of HB 6425 are problematic in themselves: among others, the mandate that doctors lie about the cause of the patient’s death, listing the underlying illness only, not the ingestion of the lethal cocktail; the removal of qualifying restrictions from previous bills regarding who can serve as witnesses to the patient’s written request; and the fact that the primary care physician and the “consulting” physician can now share a practice. But the bill must also be viewed in its larger context.

The New York Times Magazine reported on May 3, 2020, that the slogan of Compassion and Choices, which avidly promotes this legislation nationwide, found its way onto a sign at a “You Can’t Close America!” super-spreader event for Trump supporters last spring in Austin, Texas. The faulty premise of “My life, my death, my choice,” present at that rally and in this legislation, is that individual decisions are made in a vacuum without impact on the larger community. While it may offer “choice” for the few, medical assisted suicide is an existential threat to the many.

Medical practitioners already pronounce judgment on a patient’s “quality of life” based upon personal preferences and prejudices combined with institutional mandates and insurance company imperatives to slash costs. The underlying social Darwinist mentality is never acknowledged, but the telling phrase “death with dignity” is often used, suggesting that the care required by many who are disabled, elderly or seriously ill demeans them and burdens caregivers and society. This repudiation of our human connection and responsibility to each another lies at the core of these bills, which contain the seeds of abuse, neglect and coercion.

To deny this and to dismissively state that we are “fighting a battle we don’t need to fight” is insulting and belittles the lived experiences of those who have been forced to constantly struggle against the medical system to get needed care for ourselves or our loved ones. My mother was a Medicare/Medicaid patient who suffered from dementia in her later years. I was browbeaten and harassed by many of her providers and other medical personnel who wanted me to “let her die.” Along with their pious mantras about “quality of life” and “death with dignity,” I was also told point blank by hospital administrators that they could not “afford” to keep treating her.

The longstanding, ugly reality of health care rationing for certain populations was made publicly visible by the COVID crisis: poor, disabled, elderly, Black and brown people already face lethal discrimination. How can proponents of medical assisted suicide now possibly doubt that it would morph into the only option available to those for whom potentially life-saving treatment is pronounced “futile” or deemed too expensive for hospitals and insurance companies to sustain? As a now-elderly person whose only insurance is Medicare, I do not want my cost-effective death, couched in someone else’s view of my diminished “quality of life,” to become the preferred (or only) “treatment” I am offered. Would you?

People coping with the pain and stress caused by a serious illness or disability are too often also forced to fight the medical system to get the care they need, if they even feel empowered to do so. When you have experienced this or witnessed it, you know it is as searing, heartbreaking and terrifying as the experiences described in Stannard’s article.

It would be unconscionable to introduce medical assisted suicide into this environment.

Instead of debating the merits of a bill to allow our doctors to kill us, the state Legislature must craft legislation to provide equitable, comprehensive and full treatment for everyone who wants it, including much improved palliative care (when freely chosen and needed.) These measures — not poison cocktails — are the way to move forward.

Joan Cavanagh lives in New Haven.

 

Michael Hickson’s Widow Files Civil Case Against Guardian Agency That Consented To His Death

[Press Release from the law firm involved:]

FOR IMMEDIATE RELEASE March 16, 2021 Chicago, Illinois

ROBBINS, SALOMON & PATT, LTD. SEEKS JUSTICE FOR MICHAEL HICKSON, FILES LAWSUIT AGAINST GUARDIANSHIP PROGRAM

Robbins, Salomon & Patt, Ltd. (RSP) on March 10, 2021, filed a lawsuit against Family Eldercare, Inc., a Texas guardianship program and two of its employees, in the District Court of Travis County, 126th Judicial District in Texas. The employees were assigned as guardians for Mr. Michael Hickson, a 47-year-old man with multiple disabilities who died at St. David’s South Austin Medical Center (SDMC) in Austin, Texas in June 2020 after being deprived of all life-sustaining treatment including artificial nutrition and hydration for six days.

Admitted to SDMC on June 2, 2020, Mr. Hickson was fighting sepsis, a urinary tract infection, pneumonia, and suspected COVID–19, all conditions for which he was successfully treated at SDMC only three months prior. Almost immediately upon Mr. Hickson’s admission and without waiting to determine if antibiotics would be successful, SDMC physicians recommended he be placed on “Do Not Resuscitate” instructions. Mr. Hickson was a quadriplegic, had an anoxic brain injury, and cortical blindness all stemming from sudden cardiac arrest in 2017. All were stable conditions.

Despite identifying the specific organism that caused the bacterial infection and lab results indicating Mr. Hickson was responsive to administered antibiotics, on June 5, 2020, his physicians, with the obliging consent of Family Eldercare, abruptly withdrew all life-sustaining treatment including artificial nutrition and hydration and designated Mr. Hickson as Do Not Resuscitate. When pressed for an explanation as to why they would not treat him, in a legally recorded conversation, one of his physicians told his wife, Mrs. Melissa Hickson, “as of right now, his quality of life, he doesn’t have much of one.” The physician then distinguished Mr. Hickson from other of his patients who were being treated aggressively for COVID–19, “his quality of life is different than theirs. They were walking, talking.”

The lawsuit asserts multiple counts of gross negligence, wrongful death and intentional infliction of emotional distress against Family Eldercare and its two assigned guardians. Among other matters, the guardians expressly instructed an SDMC social worker to keep information away from Mrs. Hickson, assured Mrs. Hickson that Mr. Hickson was receiving artificial nutrition and hydration, and fatally, never questioned the physicians’ recommendation to withdraw all life- sustaining treatment including artificial nutrition and hydration. Those guardians then never informed Mrs. Hickson of her husband’s demise, and 22 days after their guardianship authority ended, granted SDMC authority to release certain of Mr. Hickson’s protected health information in a social media statement defending its actions and demeaning Mrs. Hickson. []

RSP’s litigation efforts are led by Jennifer M. Sender and Andrés J. Gallegos. RSP is co-counseling with Whitburn and Pevsner, PLLC.

Lisa Blumberg: It’s not end-of-of life care. It’s assisted suicide, and it needs to be stopped

It’s not end-of-of life care. It’s assisted suicide, and it needs to be stopped

Hartford Courant, March 16, 2021

Photo of Lisa Blumberg, head and shoulders shot of a smiling woman with short gray hair and a dark blue blouse seated with a desk of files and books in the background.
Lisa Blumberg

It defies imagination that Connecticut is contemplating legalizing assisted suicide when COVID-19 deaths have exceeded 500,000 nationwide. The virus has laid bare the inequities and prejudices of our health system. Low-income people and people of color are dying at disproportionately high rates. Connecticut has the highest COVID-19 nursing home death rate in the Northeast. There have been an appalling 91 nursing home deaths per 100,000 Connecticut residents. [1] Early in the crisis, members of the Harvard Medical School Center for Bioethics wrote chillingly that “typical medical options may soon not be available to everyone.”

Yet, as concerned health care providers said, “Guidelines that evaluate patients by age or ‘comorbid conditions [that] impact survival’ or ‘underlying medical diseases that may hinder recovery’ implicitly rely on value judgments about these patients’ quality of life and deny these patients justice in our health care system.”

The Connecticut assisted suicide bill would let a doctor write lethal prescriptions for people deemed to have a life expectancy of less than six months if they so request, and would grant broad legal immunity to everyone involved in their deaths. Terminology about an “end-of-life option” or “aid in dying,” confusing assisted suicide with palliative care, or soaring rhetoric about choice and self-determination belies the fact that the only course of action facilitated is death.

There is a sharp distinction between a patient deciding when not to have life-prolonging treatment — which a patient has every right to do — and a doctor actively and knowingly prescribing lethal drugs to directly cause the patient’s death. As Dr. Joseph Marine, professor at Johns Hopkins University School of Medicine, has stated, assisted suicide “is not medical care. It has no basis in medical science or medical tradition. … The drug concoctions used to end patients’ lives … come from the euthanasia movement and not from the medical profession or medical research.”

It is a misconception that people turn to assisted suicide due to uncontrollable pain. Oregon data indicate that among the leading reasons people request lethal prescriptions are psychosocial factors such as perceived lessening of autonomy or feeling they are a burden. An “end of life option” law forecloses options in a very basic sense. It arbitrarily uses health status to exempt people from the suicide prevention services others receive (while discounting the possibility of errors in diagnosis and prognosis as well as the potential for support services to address the person’s concerns).

Assisted suicide sends the wrong message to people with disabilities. It is telling that in Washington state, one of few states that, like Oregon, has legalized assisted suicide, just 4 percent of the people who have used the act were given mental health evaluations.

Although the law proposed for Connecticut would mandate that a person receive “counseling” to determine mental status before obtaining lethal drugs, that is just to determine if there is “impaired judgment.” The law also allows for licensed clinical social workers, in addition to psychologists or psychiatrists, to do the mental health consultation. There is also no requirement that a person be evaluated just prior to taking these drugs. Mood and outlook can fluctuate radically based on physical factors like oxygen level as well as situational factors such as dread of being isolated in a nursing home because of the lack of in-home support.

Disinterested parties need not be present to ensure the drugs are self-administered and taken freely. The difficulties created by the pandemic have caused domestic abuse to skyrocket. There are bound to be at least some cases in which a person is steered or coerced into taking the pills by someone whose life might be emotionally, practically or financially easier if he died sooner rather than later.

In this grim time, a Boston University study has found that COVID-19-related stressors have caused one out of three adults to be depressed. The lead author wrote eloquently, “We would hope that these findings promote creating a society where a robust safety net exists.”

Legalizing assisted suicide would do the opposite. It would increase the shredding of the social fabric. Now is not the time for the state to enact this type of law. If we are honest about the inherent dangers, there will never be such a time.

Lisa Blumberg is a Hartford-area lawyer, writer and disability rights activist.

[1] The online article incorrectly stated that there were 91 nursing home deaths per “100,000 nursing home residents” instead of per “100,000 state residents.” See https://www.journalinquirer.com/connecticut_and_region/connecticut-has-highest-northeast-virus-death-rate-in-nursing-homes-report-says/article_7258891e-e22d-11ea-9e7d-a3f9ec5de365.html