Last November, NDY filed a Public Comment on HHS/OCR Proposed Section 504 Healthcare Regulations. This week, the Department of Health and Human Services announced the finalization of the new regulationprohibiting disability discrimination in healthcare under Section 504 of the Rehabilitation Act. While the primary focus of our public comment was the denial of life-sustaining healthcare […]
On November 2, Newsweek published an excellent op-ed by Matt Valliere, Executive Director of the Patients Rights Action Fund (PRAF), entitled The Brutal, Tragic, Consequences of Quality of Life Judgements. Though PRAF’s mission is focused on opposing assisted suicide laws, the op-ed does an uncommonly good job discussing other discriminatory and harmful medical practices that […]
The American Association of People with Disabilities issued the following press release announcing the more than 80 organizations that signed a letter calling on policymakers to reject health policies that discriminate. NDY’s President/CEO was quoted in the release below. The letter is in pdf and text formats, here and here, respectively. Advocates for People with Disabilities, […]
At first, responding to the draft principles of the Patient-Centered Outcomes Research Institute (PCORI) seemed more complex than NDY could fit into our tight schedules. But the principles were in response to new language added to PCORI’s authorizing law: . . . In addition to the relative health outcomes and clinical effectiveness, clinical and patient-centered […]
The National Council on Disability issued the following release on November 6, announcing the latest report in its bioethics series. Federal study finds certain health care cost-effectiveness measures discriminate, restrict access to lifesaving treatments for people with disabilities For Immediate Release […]
Not Dead Yet is deeply concerned by the New York Legislature’s failure to protect people with disabilities from discrimination in the budget passed this week. Despite widespread criticism from the disability community, the Legislature incorporated language in the budget authorizing the state to use third party assessments, including those relying on the discriminatory and harmful Quality Adjusted Life […]
Last Thursday, Not Dead Yet was one of “over 70 individual patients and patient organizations” that joined the Partnership to Improve Patient Care (PIPC) in a letter to the Department of Health and Human Services (HHS), calling for recognition of us as stakeholders in the Better, Smarter, Healthier initiative and in the Health Care Payment Learning and Action Network. […]
While national disability organizations work hard to influence the federal budget debates, painful Medicaid cuts are already being considered and implemented at the state level across the country. Getting disability advocates and issues to the table is a major challenge. The Executive Director of the Center for Independence of the Disabled in New York just […]
