Anita Cameron: Fight for Life and Health – Not Assisted Suicide!

Photo-style profile drawing of Black woman with caramel color skin, long locs with flecks of gray wearing a red t-shirt.
Anita Cameron (Artist: Jennifer White-Johnson)

As we in the Black community celebrate freedom, liberation, and life on Juneteenth, there is a movement afoot that will endanger the lives of the most vulnerable in our community.

This dangerous movement is the push for legalization of assisted suicide, sometimes called medical assisted suicide, across the United States.

Assisted suicide is when someone, usually terminally ill, with six months or less to live, makes a request for a lethal dose of medication prescribed by a physician or medical provider. After the waiting period, if there is one, the provider issues the prescription, the person or someone designated by them picks it up, and the medication is ingested by the person to whom it is prescribed. There is no doctor or witness required to be present to report if the medication was taken by the person, themselves, as is the law, or administered by someone else, which is illegal. Currently, assisted suicide is legal in ten US states and the District of Columbia. As of this year, 2024, 20 states have either introduced assisted suicide legislation or have expanded bills that have already passed.

As access to healthcare, services and supports are being stripped from disabled people around the country, we cannot continue to push forward with assisted suicide laws. Cuts to funding for home care services, as well as reduction or elimination of eligibility to those services, combined with racial and disability disparities and discrimination in healthcare, will lead to those being deemed to be terminal to feel that they have no choice but to ask for assisted suicide. Lack of access to home care givers due to workforce shortages, with workers unable to work enough hours and earn a livable wage, will further compound this.

As a disabled Black person, I am alarmed at the negative impact that the normalization of assisted suicide will have on Black disabled, in particular, because contrary to what assisted suicide proponents say, assisted suicide is all about disability. After all, people who are terminally ill are part of the disability community and are protected under the Americans with Disabilities Act.

According to the Oregon data (Oregon was the first state to enact an assisted suicide law), the top five reasons people request assisted suicide are: loss of autonomy, decreasing ability to participate in enjoyable activities, loss of dignity, feelings of being an emotional or financial burden on family and loved ones, and loss of control of bodily functions, such as incontinence and vomiting. These are all disability related reasons that can be addressed with services and supports, not assisted suicide.

We Blacks are overwhelmingly against assisted suicide, but there’s an organization called Compassion and Choices that’s going into Black communities trying to convince us that assisted suicide is a good thing and that it’s a right. That’s how they bamboozle us by couching it in those terms, because we know what it feels like not to have basic human and civil rights.

Compassion and Choices, once known as The Hemlock Society, is an organization formed and led by middle and upper middle class whites. This demographic of white people overwhelmingly support assisted suicide. Compassion and Choices hires middle class Black staff to come into our communities to spread the lie about assisted suicide because they know that we’re more likely to listen if information comes from someone who looks like us. As a result, some middle class and wealthy Blacks are falling for this farce. As assisted suicide becomes normalized, racial disparities in healthcare will mean that Black patients will be more likely to be written off as terminal and steered towards ending our lives. Being disabled compounds this. Disabled people also experience health disparities because doctors quite literally devalue our lives, don’t want us as patients and don’t believe that we are treated unfairly. Add being Black to that, and the risks of being written off as terminal in a state where assisted suicide is legal, rises exponentially.

In the face of rampant healthcare inequities, it’s no surprise that assisted suicide is rarely used by the Black community. We fight to live. We fight to get access to treatment. We fight for end of life treatment. We fight for medical care that most white folks take for granted.

Black people, wake up and remember our history! Realize and understand what white supremacy is and how it works! Listen to our elders. Listen to Black disabled folks whose lives are devalued every day. Listen to poor Black folks on the street who can tell of the injustices they suffer in emergency rooms across the nation because they’re poor and homeless. Compassion and Choices does not have the best interests of the Black community in mind. They do not care about us; they are merely promoting an agenda. They know full well about the racial disparities in healthcare, but are hoping that either we don’t know or that we have forgotten. They want us to believe that since we Blacks are less likely to receive adequate end of life care that assisted suicide is the answer. It is not! It is not our culture. Black culture is about the celebration and the uplifting of life. Our culture is of freedom, justice, joy and liberation.

Assisted suicide puts us Black folks, particularly if we have disabilities, are sick, are elders, or poor, at grave risk. It is discrimination of the highest order and we must fight back and fight hard against this malevolent form of white supremacy. 

Don’t Forget: Today is World Elder Abuse Awareness Day

Today is World Elder Abuse Awareness Day. According to the National Council On Aging:

Approximately one in 10 Americans aged 60+ have experienced some form of elder abuse. Some estimates range as high as five million elders who are abused each year. One study estimated that only one in 24 cases of abuse are reported to authorities.

… In almost 60% of elder abuse and neglect incidents, the perpetrator is a family member. Two thirds of perpetrators are adult children or spouses.

Despite such a high prevalence, assisted suicide laws and their proponents rarely if ever address or bring up the topic. The fact that various forms of elder abuse – physical, emotional, financial – could cause an elder to want to die doesn’t seem to raise concerns. At best, they assign doctors the role of identifying coercion or abuse and, very rarely, referring the patient to psychological professionals to assess decisional capacity.

A few recent assisted suicide laws or bills also say that the doctor should meet with the patient alone to discuss potential coercion, pressure or abuse, but will that really work? How good are doctors at detecting abuse? According to an article in American Family Physician:

Despite [the] expected increased demand for expertise, physicians generally lack training, experience, education, and adequate guidelines for the assessment and management of abuse. Less than 2% of reports of elder abuse and neglect to state APS agencies come from physicians.

So purported protections against assisted suicide being granted in situations involving coercion and abuse are really just window dressing, form without substance. In practical terms, these laws only protect a prescriber who has little or no ability to protect the patient.

Boston Globe: “For assistance in dying, please press 1”

Liz Carr’s documentary, “Better Off Dead?”, continues making a difference, serving as a wake up call about the dangers assisted suicide laws pose for people with disabilities. A Boston Globe columnist noted this week:

The most chilling detail in “Better Off Dead?” a new BBC documentary by the English actress and comedian Liz Carr, is an automated telephone message. …

 “Thank you for calling. The Ontario Medical Assistance in Dying Care Coordination Service is designed to provide information about end of life options in Ontario and referrals for Medical Assistance in Dying. If you would like to speak with an adviser to access the service or get more information, please press 1.”

As the Globe column points out, proponents are advocating for passage of assisted suicide laws in the United Kingdom and Massachusetts (as well as other U.S. states). They argue that eligibility is strictly limited to people whose conditions are terminal. However, since eligibility is based on a doctor’s prognosis (currently in the U.S., six months till death), it can be incorrect and the Oregon data from people who wait past 6 months to take the lethal drugs shows that it is incorrect sometimes.

Line in the sand vs shifting sands…

The Globe column describes a conversation between Liz Carr and one of the leading proponents of assisted suicide in the UK House of Lords:

In her documentary, Carr interviews one of those advocates, Lord Charles Falconer, who dismisses concerns that the criteria for assisted dying will inevitably be expanded. “Once a legislature decides it’s going to be terminal illness only, it will stick at that,” he says firmly. “The line in the sand for me is terminal illness. It goes no further than that.”

But the thing about sand, as Carr observes tartly, is that it shifts.

It certainly shifted in Canada. When MAID took effect in 2016, its boundaries were clear: Only mentally competent adults dying of a terminal condition could be approved for euthanasia. …

Yet soon the law was expanded to include anyone with a “grievous and irremediable medical condition,” whether fatal or not.

Expansion of assisted suicide laws – often called the “slippery slope” or “incrementalism” – has happened in the U.S. (e.g., waiting periods reduced or eliminated, new types of lethal drug prescribers allowed) but more slowly than in some countries. Unlike countries which legalized assisted suicide nationwide, proponents in the U.S. were essentially forced by the Supreme Court to enact bills state-by-state following the Glucksberg decision. Proponents are likely hoping that the number of states with assisted suicide laws will reach “critical mass” soon, but judging by their hesitation to support the outrageous California expansion bill SB 1196 earlier this year, they don’t think they are “there” yet.

The Globe column also gave credit to disability activists’ opposition to these bills.

Among the most eloquent opponents of assisted-suicide laws are disabled activists who fear that once people are allowed to seek a doctor’s help in ending their life, many will be coerced into doing so. That coercion might come from family members unwilling to bear the strain of long-term medical care when assisted suicide is a cheap alternative. It might come from insurance companies refusing to reimburse the cost of lifesaving treatments once legalization lets them offer aid in dying as a covered benefit instead. It may come from physicians, many of whom, recent research shows, underestimate the quality of life of individuals with significant disabilities.

The Globe has had over ten years to observe the successful advocacy of John Kelly and Second Thoughts MA which is based in Boston. Hopefully more news outlets will take notice of the important work disability advocates are doing in many states and nationally on this issue. Medically assisted suicide is not part of healthcare and is not a progressive social cause. Give this issue the Second Thoughts it deserves.

Second Thoughts MA protest gains important news coverage

Second Thoughts Massachusetts led a peaceful counter demonstration at a gathering of assisted suicide proponents held at the Massachusetts State House on Wednesday, June 5th.

A group photo of six people in purple Second Thoughts t-shirts, three wheelchair users and three standing behind them in a large hall.
Seated: John Kelly, Randi Shea, Brian Shea
Standing: Chip Guiney, Glacier Gray, Ashlinn Parnell

In addition to those featured in the photo above, others who participated included Ian McIntosh and Jessica Rodgers of the Patients Rights Action Fund, Harry Weissman, Director of Advocacy for Disability Policy Consortium, as well as Gabriell Paye, Jon Ball, John Robinson and Dr. Rich Florentine.

The State House News Service (SHNS) provided unusually balanced coverage of the disability led demonstration against the assisted suicide bill currently before the Massachusetts legislature.

While it is all too common to see only a brief paragraph or sentence about opponents near the end of a lengthy article favoring physician assisted suicide laws, SHNS started with and frequently returned to Second Thoughts Massachusetts member Pamela Daly for her perspective. Below are some excellent excerpts from the article, Shifting views color Aid In Dying debate:

BOSTON, Mass. (SHNS)–When Pamela Daly first heard about the proposed legislation to give certain terminally ill patients the legal option to end their lives with a doctor’s prescription, she thought it was great that people could have a choice about how and when to die. …

But on Wednesday, … at the back of Nurses Hall, Daly and other advocates from Second Thoughts Massachusetts were holding signs and demonstrating against the controversial, long-discussed policy.

…Daly said she realized as she learned more about the proposal that it could be “extremely difficult and dangerous for many populations … just marginalized people in general.”

“They have a very simple argument, those people. Easy, who’s going to disagree with them? Who wants to suffer?,” she said after supporters talked about the pain of watching their loved ones suffer in their final days. “We have a much harder argument.”

The issue of physician-assisted death has lingered around Beacon Hill for years, with advocates claiming steps of progress as the Massachusetts Medical Society voted to drop its longstanding opposition and instead adopt a position of neutral engagement, and then as aid-in-dying legislation got a favorable report from the Public Health Committee after at least five straight sessions of being sent to study.

…But despite the talk of progress, … Daly and other opponents said they don’t sense the same kind of momentum for the legislation as supporters do. She said the feedback she hears from lawmakers suggests there is little appetite among elected officials to wade into the touchy topic.

“I don’t think it’s as close as they seem to think it is. There are a lot of politicians who don’t like to speak about this bill because it’s so controversial … and they feel that it’s such a big quagmire,” Daly said. She added, “It affects so many people in so many different ways.”

…Opponents like Daly contend that authorizing the policy could expose patients to coercion and abuse. Disability advocacy groups warn of a slippery slope — arguing that authorizing assisted death for terminally-ill patients is “just another incremental step to make non-terminal disabled people eligible for this as has happened in Canada and much of Europe,” John Kelly of Second Thoughts Massachusetts said.

###

Great work by Second Thoughts MA in ensuring that legitimate concerns about a public policy of assisted suicide were heard in the ongoing debate.

Advisory: Disability Rights Advocates Opposing Assisted Suicide Available for Interviews

MEDIA ADVISORY                                                                  CONTACT

June 3, 2024                                                                           John Kelly 617-952-3302

                                                                                                       Pamela Daly 617-543-7868

Disability Rights Advocates Opposing Assisted Suicide Available for Interviews

WHAT:       Press availability of disability rights activists and allies in opposition to the assisted suicide bill S.1331, the “End of Life Options Act,” now before Senate Committee on Ways and Means.

WHERE:     The Massachusetts Statehouse, Nurses Hall; 2nd floor.

WHEN:     Wednesday June 5, 2024; starting at 10:30 am

WHO:       Second Thoughts Massachusetts and allies (look for purple t-shirts and signs)

Compassion & Choices (formerly the Hemlock Society) will also be hosting an event starting at 11 AM.

Second Thoughts Director John B. Kelly says, “Legalized assisted suicide is less about pain and more about fear of increasing disability and dependence on others. We support equal suicide prevention services, and yet individual suicide isn’t illegal. Our bottom line: keep your assisted suicide away from vulnerable people and our unequal and broken healthcare system.” John is commonly referred to as “paralyzed from the neck down,” which makes him eligible, in Canada and elsewhere, for lethal injection.

Second Thoughts member Pamela Daly says, “Bills like S.1331 have the potential to cause great harm to marginalized people like me and must not pass. Its safeguards are ridiculously easy to get around, and in other states that passed these bills, proponents soon got busy weakening them.”

Colin Killick, Executive Director of the Disability Policy Consortium (DPC), says: “Until we live in a world where free, high-quality health care and personal care assistants (PCA) services are available to everyone, where ableist stigma didn’t tell people with disabilities that their lives don’t have value, we must not pass this law.”

DPC Director of Advocacy Harry Weissman will attend and be available to speak with the media.

Kelly notes that all the leading national disability groups that have taken a position on assisted suicide, have come out against it.

In May, BBC One aired actor Liz Carr’s documentary, “Better off Dead?, which at last presents a disability perspective on assisted suicide. Just watch the first 7 minutes for a glimpse of the threats we face. Or search for “Liz Carr YouTube Better off Dead?”

Second Thoughts is a grassroots group of disability rights advocates from Massachusetts and the region which opposes the legalization of assisted suicide as a deadly form of discrimination against disabled people. We demand social justice against laws, policies, and media messages fueled by social bias. We organized in 2012 to help defeat assisted suicide Ballot Question 2. Since then, we have helped defeat 5 more bills in the legislature.

###