The Charlie Gard case concerns a young British child with a very rare genetic condition that has currently left him unable to move, breathe or eat on his own. His parents wanted to take him to the United States for experimental treatment but his London doctors, believing he has suffered enough, wanted to turn off … Continue reading Lisa Blumberg: What Principles Should Govern Charlie Gard’s Case?
Not Dead Yet and other disability advocates and rehabilitation physicians have worked with Respecting Choices, a national leader in the field of advance care planning, to develop fact sheets on feeding tubes and breathing supports. Today, they announce the results of an over two year collaborative effort. The project began following an open letter from … Continue reading Not Dead Yet and Respecting Choices Announce Successful Collaboration
The Administration for Community Living (part of the Administration on Aging within the U.S. Dept. of Health & Human Services) is seeking comments on draft voluntary consensus guidelines for Adult Protective Services. The original deadline for comments was October 30, but it’s been extended to November 13. More information and a portal for submitting online comments … Continue reading NDY Submits Comments On Adult Protective Services Guidelines
