Category Archives: HHS

Press Release: Not Dead Yet Urges Secretary Sebelius and Organ Procurement and Transplantation Network to Prohibit Organ Procurers from Pressuring Sick or Injured to Give Up on Living

brain injury, donation after cardiac death, HHS, Institute of Medicine, life-sustaining treatment, OPTN, organ donation, Organ Procurement and Transplantation Network, Our News & Commentary Blog, Press Releases, Second Thoughts, United Network on Organ Sharing

Summary:  Not Dead Yet, a national disability rights organization, is calling upon Health and Human Services Secretary Kathleen Sebelius and the Organ Procurement and Transplantation Network to adopt national standards prohibiting organ procurement staff from initiating organ donation discussions with individuals or family members before they have made a decision to withdraw life-sustaining treatment. The … Continue reading Press Release: Not Dead Yet Urges Secretary Sebelius and Organ Procurement and Transplantation Network to Prohibit Organ Procurers from Pressuring Sick or Injured to Give Up on Living →

Disabilityscoop fails to get the real scoop – Disability, organ transplantation and the HHS

ari ne'eman, Autistic Self-Advocacy Network, disabilityscoop, discrimination, HHS, national council on independent living, national disability leadership alliance, organ donation, organ transplants, Our News & Commentary Blog

On September 14, three representatives of the National Disability Leadership Alliance (NDLA) met with the Health and Human Services (HHS) Division on Transplantation.  Two major concerns were brought to the meeting. Kelly Buckland, the Executive Director of the National Council on Independent Living (NCIL), was one of the participants and NCIL published a brief report … Continue reading Disabilityscoop fails to get the real scoop – Disability, organ transplantation and the HHS →