Category Archives: public comment

NDY Submits Public Comment to NY Dept. of Health on Advance Care Planning

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The New York Department of Health recently requested public input from health care providers and patients on how to make advance care planning forms more understandable and easy to use. The Department provided a response template with questions focused on people’s experiences with three forms: the health care proxy, out-of-hospital do not resuscitate order (DNR) … Continue reading NDY Submits Public Comment to NY Dept. of Health on Advance Care Planning →

NDY & ADAPT Submit Public Comments To Virginia Commission Opposing Potential Assisted Suicide Legislation

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The Virginia Joint Commission on Health Care has requested public comments by close of business on October 15 concerning several policy issues, including one option that would recommend the introduction of assisted suicide legislation. It’s called  Policy Option 2, worded as follows: Introduce legislation to amend the Code of Virginia to include a Medical Aid-in-Dying statute … Continue reading NDY & ADAPT Submit Public Comments To Virginia Commission Opposing Potential Assisted Suicide Legislation →

NDY Public Comment On Guardianship Urges More Rights Protections for Disabled & Elders

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One of the longest standing concerns of the disability rights movement is the misappropriation by others of our rights to make our own decisions. This problem touches every facet of life and is a major factor in the continuing incarceration of older and disabled people in nursing facilities and other institutions for the “crime” of … Continue reading NDY Public Comment On Guardianship Urges More Rights Protections for Disabled & Elders →

The Opioid Crisis the News Isn’t Talking About

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Response to RFI – Opioid Public Health Emergency[1]  February 20, 2018 We are members of Not Dead Yet, a national grassroots disability rights organization, and some of us are living with chronic pain ourselves. Based on our knowledge of the disability community through personal experience and through our work, we have not seen disabled people with … Continue reading The Opioid Crisis the News Isn’t Talking About →

NDY Files Public Comment on CMS Proposal on Advance Care Planning

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NDY’s comment letter can be summarized as follows:  We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than … Continue reading NDY Files Public Comment on CMS Proposal on Advance Care Planning →