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…r home page Full Written Public Comment: Disability Related Concerns About POLST Futility judgments – some doctors think patients go too far Get help Get Involved IN THE NEWS – John B. Kelly’s Response to Institute of Medicine’s Committee on Approaching Death Online Survey John Kelly Testimony in Opposition to Minnesota HF 1930 John Kelly: Organizing a Disability Rights Campaign Against Assisted Suicide Laws: Coalition, Communication, and Consiste…

NDY Submits Public Comment to NY Dept. of Health on Advance Care Planning

…ng term care facilities to mistakenly believe that they should have a MOLST form for every resident, and some home care providers to make a similar mistake. This is not consistent with the POLST Paradigm professional guidance (see http://polst.org/professionals-page/?pro=1). If you want to read the whole NDY public comment, please go here….

Get help

…rogate rules, futility law, Physician Orders on Life-Sustaining Treatment (POLST). Ask your doctor about his or her views on futility, & the policies of the hospitals he or she uses. Consider whether you need to find a doctor who will support your wishes. Put together a list of advocates, lawyers, groups and reporters that might be able to help you in a crisis; include your state protection and advocacy agency (use the directory at http://www.ndrn…

John Kelly’s Testimony to the New Hampshire House Judiciary Committee In Opposition to HB 1325

…to sign forms like your Provider Orders for Life-Sustaining Treatment, or POLST. HB 1325 uses a definition of “terminal condition” that directly threatens the lives of me and many of my disabled friends. Section 13 reads: “Terminal condition” means an incurable and irreversible condition, for the end stage for which there is no known treatment which will alter its course to death, and which, in the opinion of the attending physician and consultin…

Institute of Medicine’s Committee on Approaching Death Requests Public Comments Via Online Survey By November 1st

…mments about problems with Physician Orders for Life-Sustaining Treatment (POLST) that negatively impact people with disabilities. With only two meetings left before its final report, the Committee is providing one last avenue for public input via an online survey, consisting of six open ended questions. The deadline is November 1st. The introduction defines those who are “likely approaching death” very broadly: To help the committee with its work…