All posts by Diane Coleman

National Council on Disability Will Consider Proposal to Address Health Care Decisions Policies that Threaten the Lives of People With Disabilities

ASAN, Autistic Self-Advocacy Network, Dr. Norman Fost, ethics committee, futility, national council on disability, Our News & Commentary Blog, Surrogate Decisions & Guardianship, ,

The National Council on Disability met on May 6th at the Ed Roberts Campus in San Francisco.  This is a presidentially appointed Council that advises the Administration on disability policy.  The Council always offers opportunities for public comment, and NDY has been asking NCD to help lead efforts to address abuses in health care decisions … Continue reading National Council on Disability Will Consider Proposal to Address Health Care Decisions Policies that Threaten the Lives of People With Disabilities →

ADAPT Wins Meeting with Leadership Conference on Civil Rights to Address Disconnect Between Disability Rights and Broader Civil Rights Movement

ADAPT, Our News & Commentary Blog

ADAPT took hundreds of disability rights advocates in Washington, D.C. this week to a surprising advocacy destination today:  the offices of the Leadership Conference on Civil Rights.  ADAPT asked their help to address the “disconnect” between the disability rights community and the broader civil rights movement.  We’re still awaiting the results and next steps, but … Continue reading ADAPT Wins Meeting with Leadership Conference on Civil Rights to Address Disconnect Between Disability Rights and Broader Civil Rights Movement →

Disability Rights Leadership Institute on Bioethics: Advancing the Disability Rights Perspective on Bioethics Issues

Amy Hasbrouck, ari ne'eman, ASAN, Autistic Self-Advocacy Network, bill peace, bioethics, Bob Kafka, dredf, Liz Carr, national council on independent living, NDRN, Norm Kunc, Our News & Commentary Blog, Toujours Vivant-Not Dead Yet, , , , , ,

Months of work came to fruition on April 25 – 26, 2014 at the Crystal City Marriott in Arlington, VA.  Conference planning experts told us to expect a 10% no show rate, but out of our final count of 68 who signed up to attend (we had initially expected about 50), only 3 missed it.  … Continue reading Disability Rights Leadership Institute on Bioethics: Advancing the Disability Rights Perspective on Bioethics Issues →

Second Thoughts Connecticut Negotiates POLST/MOLST Legislation With Consumer Protections We Can Live With

advance directives, Cathy Ludlum, Connecticut, disability activists, Jason Manne, legislation, life-sustaining treatment, MOLST, National Healthcare Decisions Day, Our News & Commentary Blog, POLST, Second Thoughts Connecticut, , ,

National Healthcare Decisions Day is April 16th.  I hadn’t really expected the Centers for Disease Control to be one of the leading resources for my intro on this topic, but they had quite a bit to say: April 16th is recognized each year as National Healthcare Decisions Day to inspire, educate, and empower the public … Continue reading Second Thoughts Connecticut Negotiates POLST/MOLST Legislation With Consumer Protections We Can Live With →

Dialogue Begins About Feeding Tubes and Breathing Devices With Respecting Choices Program

Our News & Commentary Blog

Last December, a significant number of national and local disability rights organizations as well as individuals with disabilities and supporters signed onto a letter addressed to the Respecting Choices advance care planning program at Gundersen Health Systems in LaCrosse, Wisconsin.  The letter criticized two documents for inaccuracy and bias in their discussions of feeding tubes, … Continue reading Dialogue Begins About Feeding Tubes and Breathing Devices With Respecting Choices Program →