Category Archives: advocacy

Update on Amelia (Philadelphia Transplant Denial) With Welcome News

I’m happy to share an update on a story we covered earlier this year – about a young girl – Amelia – who has Wolf-Hirschhorn syndrome.  Back in January, her mother wrote about an awful meeting at the Children’s Hospital of Philadelphia about Amelia’s failing kidneys.  They were told by the transplant surgeon that her … Continue reading Update on Amelia (Philadelphia Transplant Denial) With Welcome News

Boston, MA: Boston Mayor Proclaimed July 26, 2012 ‘John B. Kelly Day’

Sorry we’re a little late with this.  As most of the folks who read this blog know, last Thursday July 26 was the 22nd anniversary of the Americans with Disabilities Act, or “ADA Day”. In Boston last week, the ADA shared the spotlight with our very good friend John Kelly – ally, activist, scholar and … Continue reading Boston, MA: Boston Mayor Proclaimed July 26, 2012 ‘John B. Kelly Day’

‘Second Thoughts’ Director John Kelly in Boston Globe Article on Assisted Suicide Referendum

Yesterday’s (April 29) edition of the Boston Globe featured a long article about some of the issues and players central to November elections in Massachusetts when voters will decide whether or not to legalize assisted suicide in their state. The good news is that John Kelly, director of Second Thoughts – people with disabilities opposed … Continue reading ‘Second Thoughts’ Director John Kelly in Boston Globe Article on Assisted Suicide Referendum

ADAPT Leaves DC After Making its Mark – More Work Yet to Do

Tomorrow, this blog will get back to more the “usual” fare that readers are accustomed to, although I can guarantee this won’t be the last time this blog will be featuring news about health care and the budget battles.  Remember, not so very long ago, a bunch of Republican candidates who want to be the … Continue reading ADAPT Leaves DC After Making its Mark – More Work Yet to Do

“My Medicaid Matters” Rally Is Happening NOW – text of NDY speech

Followup on yesterday’s post.  The My Medicaid Matters rally is underway.  We’ve heard the number of organizational sponsors is over 90 now. In the coming days, I’ll attempt to organize some material and media related to the rally and to ADAPT’s actions prior to the rally in Washington, DC. I’m not sure how they’re doing … Continue reading “My Medicaid Matters” Rally Is Happening NOW – text of NDY speech