I’m happy to share an update on a story we covered earlier this year – about a young girl – Amelia – who has Wolf-Hirschhorn syndrome. Back in January, her mother wrote about an awful meeting at the Children’s Hospital of Philadelphia about Amelia’s failing kidneys. They were told by the transplant surgeon that her […]
I’m happy to share updates on the apparent case of disability bias in a situation involving the denial of a transplant to girl with developmental disabilities, which we reported on earlier this month. First, I received this email message from the managers of wolfhirschhorn.org on January 26: Hello wolfhirschhorn.org followers:Over the course of the last […]
Recently, Diane Coleman wrote about new proposals to increase the pool of donor organs, and that have particularly disturbing ramifications in terms of the care and treatment of newly disabled individuals. We already know that organ transplant teams are more than willing to obtain organs from individuals with long-term disabilities, as highlighted by the case […]
