The hospital may not have called it a “futility judgment” when they pushed Chris Dunn to go into hospice as an alternative to spinal cord injury rehabilitation, but it’s hard to see it any other way. Here’s an extended excerpt from United Spinal Association’s New Mobility article “Refusing To Die: The Chris Dunn Story“: By … Continue reading United Spinal Assn. Helped Fight A Futility Judgment And Won!
The National Council on Disability issued the following release on November 6, announcing the latest report in its bioethics series. Federal study finds certain health care cost-effectiveness measures discriminate, restrict access to lifesaving treatments for people with disabilities For Immediate Release … Continue reading Federal study finds QALYs restrict access to lifesaving healthcare for people with disabilities
The National Council on Disability (NCD) has issued the second in a series of reports on Bioethics and Disability. NCD’s release on the report today focuses on “a federal examination of the country’s assisted suicide laws and their effect on people with disabilities, finding the laws’ safeguards are ineffective and oversight of abuses and mistakes … Continue reading Federal study finds assisted suicide laws rife with dangers to people with disabilities
By now, many who read this message will know that Bill Peace died not long after midnight this morning. In the hours since, the outpouring of both grief over our loss and celebration of his life is nothing short of incredible. He has been one of an increasingly rare breed of academics who embrace disability … Continue reading Bill Peace: A Professor Who Professed Disability Activism
The Charlie Gard case concerns a young British child with a very rare genetic condition that has currently left him unable to move, breathe or eat on his own. His parents wanted to take him to the United States for experimental treatment but his London doctors, believing he has suffered enough, wanted to turn off … Continue reading Lisa Blumberg: What Principles Should Govern Charlie Gard’s Case?
