Category Archives: Our News & Commentary Blog

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Amy Hasbrouck Submits Powerful Testimony To Canadian Senate Committee

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On November 23, 2020, Amy Hasbrouck, NDY Board Member and Director of Toujours Vivant-Not Dead Yet, submitted testimony to the Senate Legal and Constitutional Affairs Committee of the Canadian Parliament. First, her description of TVNDY is a strong and moving introduction to the disability rights opposition to assisted suicide and euthanasia laws: Thank you for … Continue reading Amy Hasbrouck Submits Powerful Testimony To Canadian Senate Committee →

NDY Joined In PIPC Comment, and Filed Its Own, Regarding PCORI Principles

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At first, responding to the draft principles of the Patient-Centered Outcomes Research Institute (PCORI) seemed more complex than NDY could fit into our tight schedules. But the principles were in response to new language added to PCORI’s authorizing law: . . . In addition to the relative health outcomes and clinical effectiveness, clinical and patient-centered … Continue reading NDY Joined In PIPC Comment, and Filed Its Own, Regarding PCORI Principles →

John Kelly – Assisted Suicide: It’s All about Disability

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Proponents of assisted suicide laws have insisted for years that assisted suicide has nothing to do with disability, when a glance at the reported “end of life concerns” in Oregon showed those concerns to be all about people’s psychological distress over the disabling aspects of their serious disease. As one example, lead Massachusetts proponent of … Continue reading John Kelly – Assisted Suicide: It’s All about Disability →

Anita Cameron Testified At “People’s Hearing” for In-Home Services

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Anita Cameron, Not Dead Yet Director of Minority Outreach, testified at ADAPT’s “People’s Hearing” on October 2, 2020, to press for full federal funding for home and community based long term services and supports. Anita makes a passionate appeal for the preservation of the Affordable Care Act, which has provisions for people like her with … Continue reading Anita Cameron Testified At “People’s Hearing” for In-Home Services →

NDY, National ADAPT, ADAPT of Texas and ASAN Join Amicus Brief In Tinslee Lewis Case

ADAPT, amicus brief, Autistic Self-Advocacy Network, bioethics, court cases, futility, healthcare rationing, life-sustaining treatment, medical discrimination, Michael Hickson, Our News & Commentary Blog, Tinslee Lewis, treatment withdrawal, ventilator, , ,

On October 8, 2020, Not Dead Yet, National ADAPT, ADAPT of Texas and the Autistic Self Advocacy Network joined in a friend-of-the-court (“amicus”) brief filed by Texas attorney Michelle Hayes to support Tinslee Lewis and her mother’s case to maintain life support. The “strange bedfellows” amici groups include disability rights, religious and pro-life organizations. Tinslee … Continue reading NDY, National ADAPT, ADAPT of Texas and ASAN Join Amicus Brief In Tinslee Lewis Case →