Category Archives: Our News & Commentary Blog

Anita Cameron: Racial Disparities in the Age of COVID-19

Racial disparities in healthcare have always existed but it’s only been recently that it has been openly discussed as a serious issue in this country. Blacks and communities of color have always known about it because we experience it ourselves, first-hand. Studies show that we receive inferior healthcare compared to Whites. Little by little, the … Continue reading Anita Cameron: Racial Disparities in the Age of COVID-19

Will Our “SOFA Scores” Become Self-Fulfilling Prophecies?

I first wrote on March 17th about my fear that the non-invasive ventilator I use everyday might be taken from me if I sought hospital care during this pandemic. The New York “Ventilator Allocation Guidelines”, developed in 2015 to address shortages in a pandemic, specifically state at page 42: In its consideration to protect vulnerable … Continue reading Will Our “SOFA Scores” Become Self-Fulfilling Prophecies?

ADAPT’s Bob Kafka Interviews Diane Coleman About NDY & COVID-19 On Barrier Free Futures

ADAPT’s Bob Kafka is a long time activist with Not Dead Yet, and is the person who actually suggested our name, based on a running gag in Monty Python and the Holy Grail. The interview excerpted below was broadcast on April 4, 2020 and the audio is archived here. Below is a long excerpt of … Continue reading ADAPT’s Bob Kafka Interviews Diane Coleman About NDY & COVID-19 On Barrier Free Futures

As the Threat of Triage Grows, Disability Rights Advocacy Is Needed More Than Ever

On Friday, April 3rd, six leading disability rights attorneys and their respective organizations issued a statement entitled Applying HHS’s Guidance for States and Health Care Providers on Avoiding Disability-Based Discrimination in Treatment Rationing. The statement, which helps to interpret the federal bulletin issued a week earlier, was joined by over 90 organizations, including NDY. One … Continue reading As the Threat of Triage Grows, Disability Rights Advocacy Is Needed More Than Ever

DREDF Brief: The Illegality of Medical Rationing on the Basis of Disability

Huge admiration and gratitude to our colleagues at DREDF for issuing a document entitled Preventing Discrimination in the Treatment of COVID-19 Patients: The Illegality of Medical Rationing on the Basis of Disability. It’s directed to “lawmakers and providers of health care, education, transportation, housing, and other critical services.” The 2nd opening paragraph explains: In the … Continue reading DREDF Brief: The Illegality of Medical Rationing on the Basis of Disability