Category Archives: “end of life”

NDY Submits Public Comment to NY Dept. of Health on Advance Care Planning

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The New York Department of Health recently requested public input from health care providers and patients on how to make advance care planning forms more understandable and easy to use. The Department provided a response template with questions focused on people’s experiences with three forms: the health care proxy, out-of-hospital do not resuscitate order (DNR) … Continue reading NDY Submits Public Comment to NY Dept. of Health on Advance Care Planning →

Supplementing Your Advance Directive With A Video

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Kaiser Health News recently carried an article encouraging people to create videos to help explain what’s in their advance directives, which are often overly complex legal boilerplate or overly simplistic checkbox forms. One thing I like about the article, Straight From The Patient’s Mouth: Videos Can Clearly State Your End-Of-Life Wishes, is the discussion of … Continue reading Supplementing Your Advance Directive With A Video →

NDY Files Public Comment on CMS Proposal on Advance Care Planning

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NDY’s comment letter can be summarized as follows:  We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than … Continue reading NDY Files Public Comment on CMS Proposal on Advance Care Planning →

Not Dead Yet, ASAN and NCIL Weigh In on IOM Report on Dying in America

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The Institute of Medicine recently solicited organizational statements of commitment in connection with its report on Dying in America.  The IOM is holding a meeting on Friday, March 20 that’s open to the public and accessible online. Not Dead Yet committed to work on advance care planning and professional education.  To be honest, we aren’t … Continue reading Not Dead Yet, ASAN and NCIL Weigh In on IOM Report on Dying in America →

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

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As folks who read this blog already know, the Institute of Medicine’s Transforming End-of-Life Care Committee sets aside a portion of its meeting agenda to receive public comments.  At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input … Continue reading Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee →