Category Archives: HHS

National ADAPT Saves Our Lives and Liberty AGAIN!

Deja Vu. The last time Congress proposed to decimate Medicaid and insurance protections, National ADAPT came to the rescue. We linked to some of the impressive coverage in this blog. Now they’ve done it again, saved the lives and liberty of millions – again! One tweet said, “In 2017, the cavalry doesn’t ride on horses. … Continue reading National ADAPT Saves Our Lives and Liberty AGAIN!

Press Release: Not Dead Yet Urges Secretary Sebelius and Organ Procurement and Transplantation Network to Prohibit Organ Procurers from Pressuring Sick or Injured to Give Up on Living

Summary:  Not Dead Yet, a national disability rights organization, is calling upon Health and Human Services Secretary Kathleen Sebelius and the Organ Procurement and Transplantation Network to adopt national standards prohibiting organ procurement staff from initiating organ donation discussions with individuals or family members before they have made a decision to withdraw life-sustaining treatment. The … Continue reading Press Release: Not Dead Yet Urges Secretary Sebelius and Organ Procurement and Transplantation Network to Prohibit Organ Procurers from Pressuring Sick or Injured to Give Up on Living

Disabilityscoop fails to get the real scoop – Disability, organ transplantation and the HHS

On September 14, three representatives of the National Disability Leadership Alliance (NDLA) met with the Health and Human Services (HHS) Division on Transplantation.  Two major concerns were brought to the meeting. Kelly Buckland, the Executive Director of the National Council on Independent Living (NCIL), was one of the participants and NCIL published a brief report … Continue reading Disabilityscoop fails to get the real scoop – Disability, organ transplantation and the HHS