Category Archives: Institute of Medicine

NDY Files Public Comment on CMS Proposal on Advance Care Planning

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NDY’s comment letter can be summarized as follows:  We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than … Continue reading NDY Files Public Comment on CMS Proposal on Advance Care Planning →

Not Dead Yet, ASAN and NCIL Weigh In on IOM Report on Dying in America

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The Institute of Medicine recently solicited organizational statements of commitment in connection with its report on Dying in America.  The IOM is holding a meeting on Friday, March 20 that’s open to the public and accessible online. Not Dead Yet committed to work on advance care planning and professional education.  To be honest, we aren’t … Continue reading Not Dead Yet, ASAN and NCIL Weigh In on IOM Report on Dying in America →

John Kelly Quoted in NPR Thanksgiving Day Article on POLST

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As regular readers of the NDY blog know, the disability community has concerns about Physician Orders for Life-Sustaining Treatment (POLST).  (For NDY’s overall take on the subject, go here, and for NDY’s summary policy paper on POLST, go here.) For one thing, even though it says “for” life-sustaining treatment, it would be more accurate to say “on” … Continue reading John Kelly Quoted in NPR Thanksgiving Day Article on POLST →

Last Day to Submit Input to IOM Committee on Approaching Death – Personal Story

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Today, November 1st, is the last day to provide input to the Institute of Medicine’s Committee on Approaching Death via their online survey, the subject of a previous blog.  Yesterday I took the opportunity to submit the following personal story involving some disturbing communications from medical professionals a couple years ago when I had some … Continue reading Last Day to Submit Input to IOM Committee on Approaching Death – Personal Story →

Press Release: Not Dead Yet Urges Secretary Sebelius and Organ Procurement and Transplantation Network to Prohibit Organ Procurers from Pressuring Sick or Injured to Give Up on Living

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Summary:  Not Dead Yet, a national disability rights organization, is calling upon Health and Human Services Secretary Kathleen Sebelius and the Organ Procurement and Transplantation Network to adopt national standards prohibiting organ procurement staff from initiating organ donation discussions with individuals or family members before they have made a decision to withdraw life-sustaining treatment. The … Continue reading Press Release: Not Dead Yet Urges Secretary Sebelius and Organ Procurement and Transplantation Network to Prohibit Organ Procurers from Pressuring Sick or Injured to Give Up on Living →