Category Archives: public comment

NDY Joined In PIPC Comment, and Filed Its Own, Regarding PCORI Principles

cost containment, healthcare rationing, life-sustaining treatment, medical discrimination, Our News & Commentary Blog, public comment, qaly, Quality Adjusted Life Years, , ,

At first, responding to the draft principles of the Patient-Centered Outcomes Research Institute (PCORI) seemed more complex than NDY could fit into our tight schedules. But the principles were in response to new language added to PCORI’s authorizing law: . . . In addition to the relative health outcomes and clinical effectiveness, clinical and patient-centered … Continue reading NDY Joined In PIPC Comment, and Filed Its Own, Regarding PCORI Principles →

Not Dead Yet Comment On Draft COVID-19 Vaccine Allocation Framework

bioethics, COVID-19, health disparities, healthcare rationing, lifeboat ethics, medical discrimination, Our News & Commentary Blog, public comment, , ,

September 4, 2020 Committee on Equitable Allocation of Vaccine for the Novel Coronavirus National Academies of Sciences, Engineering, and Medicine 500 5th St NW Washington, DC 20001 Committee Members: Thank you for the opportunity to comment on the Discussion Draft of the Preliminary Framework for Equitable Allocation of COVID-19 Vaccine. Not Dead Yet is a … Continue reading Not Dead Yet Comment On Draft COVID-19 Vaccine Allocation Framework →

NDY Files Comment Against Proposed CMS Rule Changes That Would Put More People In Nursing “Homes”

COVID-19, HHS, long term care, long term services and supports, Medicaid, national disability rights network, NDRN, nursing homes, Our News & Commentary Blog, Partnership for Inclusive Disaster Strategies, public comment, , , ,

Thanks to the Partnership for Inclusive Disaster Strategies for alerting disability advocates to proposed federal rule changes that would make it easier to put disabled people of all ages into nursing “homes” and other facilities, as well as make it harder for them to move back out to the community. The deadline for comments is … Continue reading NDY Files Comment Against Proposed CMS Rule Changes That Would Put More People In Nursing “Homes” →

Carrie Ann Lucas & Bill Peace Insurance Denials Inspire NDY Comment On Section 1557

access to health care, Affordable Care Act, discrimination, healthcare rationing, HHS, medical neglect, Our News & Commentary Blog, public comment, ,

The Trump administration has proposed changes to rules against disability discrimination by healthcare providers and insurers under Section 1557 of the Affordable Care Act. While the current rules did not effectively protect Carrie Ann Lucas or Bill Peace, gutting those rules would only rob people with disabilities and others of a legal “leg to stand … Continue reading Carrie Ann Lucas & Bill Peace Insurance Denials Inspire NDY Comment On Section 1557 →

NDY Files Public Comment on Proposed “Public Charge” Rule Change

Our News & Commentary Blog, public comment,

On December 7, NDY joined many other national disability organizations (e.g. NCIL, ASAN, AAPD) by filing our own public comment against a proposed rule change by the Department of Homeland Security. The rule change would significantly ratchet up the obstacles to lawful immigration facing people with disabilities, including children, seniors and the families who love … Continue reading NDY Files Public Comment on Proposed “Public Charge” Rule Change →