Press Release: Disability Group Urges Institute of Medicine (IOM) to Remedy “Glaring Omission” in Membership on End-of-Life Committee

January 30, 2013end-of-life care, Institute of Medicine, ira byock, Kelly Buckland, national council on independent living, Our News & Commentary Blog, press releaseStephen Drake

…o the Institute of Medicine’s recently formed Committee on Transforming End-of-Life Care to remedy what it called “glaring omissions.” The group recommended Kelly Buckland, Executive Director of the National Council on Independent Living, and Dr. Ira Byock, Director of Palliative Medicine at Dartmouth Hitchcock Medical Center. Rochester, NY (PRWEB) January 30, 2013 On Tuesday, January 29, 2013, Not Dead Yet submitted recommendations that two new m…

NPR’s Morning Edition Covers the Organ Procurement Debate

June 24, 2013bioethics, donation after cardiac death, national catholic partnership on disability, OPTN, Organ Procurement and Transplantation Network, organ transplants, Our News & Commentary Blog, Rob Stein, Stephen MikochikDiane Coleman

…es to be approached about organ donation before a decision to withdraw life-support has been made. The online NPR article quoted Not Dead Yet, although the audio broadcast did not: The proposal is raising concerns among advocates for the disabled. “Pressure could be brought to bear on people to give up on saving their lives and give away their organs,” says Diane Coleman of the group Not Dead Yet, which seeks to protect rights of the disabled. The…

Last Day to Submit Input to IOM Committee on Approaching Death – Personal Story

November 1, 2013dredf, Institute of Medicine, medical discrimination, Our News & Commentary Blog, public commentDiane Coleman

…congestion and, several hours later, I was fine again. But when my chest x-ray was being discussed, one doctor questioned whether I would want to treat something that might be life threatening. He looked at me in my wheelchair with what I’m sure he viewed as sympathy for my condition and a genuine concern to be sure that he knew what I wanted. But I also felt sure that he wouldn’t have spoken that way to a non-disabled woman at age 58. I said, “I…

Robin Williams and the Hypocrisy of Suicide Prevention Organizations

August 24, 2014american foundation for suicide prevention, assisted suicide, International Association of Suicide Prevention, Our News & Commentary Blog, suicide, suicide preventionAmerican Association for Suicide Prevention, American Association of Suicidology, assisted suicide, Final Exit Network, International Association of Suicide Prevention, Robin Williams, suicide, suicide preventionStephen Drake

…f those who overcame a suicidal crisis and resources for help. • Include up-to-date local/national resources where readers/viewers can find treatment, information and advice that promotes help-seeking. (Source: https://www.afsp.org/content/download/1066/16814/file/recommendations.pdf) Over the last eight years, the activities of the Final Exit Network (FEN) – whose “exit guides” are claimed to have facilitated hundreds of suicides in the U.S. –…

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

June 6, 2013"end of life", death through denial, dredf, futile care, Institute of Medicine, life-ending decisions, Marilyn Golden, national disability rights network, NDRN, Our News & Commentary Blog, protection and advocacy, Surrogate Decisions & GuardianshipDiane Coleman

…’s a start. Public Comment for the Institute of Medicine’s Transforming End-of-Life CareCommittee – By Diane Coleman, President/CEO, Not Dead Yet Submitted June 4, 2013 My name is Diane Coleman and I’m the President and CEO of Not Dead Yet[i], a national disability rights organization focused on public policy related to many of the issues that this Committee will address. Last Friday in upstate New York, the Democrat and Chronicle newspaper report…