…and Defense Fund (DREDF) Before the Institute of Medicine Transforming End-of-Life Care Committee May 29, 2013 I’m Marilyn Golden, Senior Policy Analyst at the Disability Rights Education and Defense Fund. We’re a leading national law and policy center on disability civil rights. We have many concerns – –the common thread is the many stories we hear from people with disabilities, again and again, illustrating that our lives are seen as less worth…
…abuse in the medical system. And I certainly didn’t anticipate working side-by-side with people of faith with whom I disagree on many political and social issues. We knew that the ADA would not end disability discrimination. What we didn’t know is that we would have to be fighting 25 years later against the ultimate, deadliest form of discrimination. There is a generation of disabled people who have never known a world without the ADA. Many are ex…
…t) John Kelly’s Presentation – Implementation and Implications of Physician-Assisted Death: It’s All about Disability at the NASEM’S Physician-Assisted Death: Scanning the Landscape and Potential Approaches – A Workshop (video, slides, slide outline text, 2/12/18) Diane Coleman & Marilyn Golden – Advocate Training for Opposing Assisted Suicide Laws – Webinar for NY Assn. on Independent Living (slides, recording by NYAIL, 01/11/16) Disability Matte…
…st assisted suicide laws since 2005. The new California law allowing doctor-prescribed suicide received significant Democrat and Republican opposition in the California Legislature, particularly in the State Assembly. It stalled in the Democrat-controlled Assembly Health Committee because of a significant failure to receive adequate support. The bill was later passed only through the use of an unusual legislative maneuver that placed the bill into…
…re services; – Undercut access to vital Medicaid healthcare as well as long-term services and supports (LTSS) needed by older and disabled Americans; and – Eliminate the incentive to provide community-based services to disabled Americans established in the Community First Choice Option. Eliminating Protections for People with Pre-existing Conditions Although recent changes to the legislation secured the support of moderate Republicans, those chang…
