Board of Directors

…tly works for Austin Community College as a Student Accessibility Services Specialist in Austin, Texas. When she is not at the office or leading NMD United, Emily spends her free time updating her various personal disability-themed blogs (www.cripbitch.com, www.cripnovella.com, and www.urinationchronicles.com) and converting her home, which she shares with her boyfriend and two dogs, into a Smart(er) Home that will someday be able to take over all…

NDY Full Written Comments on Futile Care Laws and Policies Before the National Council on Disability

…addressing this critical concern. [i] Nondiscrimination In Treatment Act, http://www.oklegislature.gov/BillInfo.aspx?Bill=HB1403 [ii] M Ollove, Oklahoma’s ‘Life-Preserving’ Law Raises Questions for Doctors, Stateline, May 16, 2013, http://www.pewstates.org/projects/stateline/headlines/oklahomas-life-preserving-law-raises-questions-for-doctors-85899476549 [iii] T Pope, Defending Disability Discrimination, Bioethics.net, May 31, 2013, http://ww…

Diane Coleman’s Response to Institute of Medicine’s Committee on Approaching Death Online Survey

…on the nondiscrimination regulations under the Affordable Care Act. These comments are available at http://notdeadyet.org/not-dead-yets-public-comment-to-u-s-dept-of-health-and-human-services-on-affordable-care-acts-nondiscrimination-regulations . Response to Question 6: Again, please see public comments on the nondiscrimination regulations under the Affordable Care Act. These comments are available at http://notdeadyet.org/not-dead-yets-public-c…

Oppose the Legalization of Assisted Suicide!

…nd National Council on Disability * National Council on Independent Living http://dredf.org/public-policy/assisted-suicide/ & http://notdeadyet.org/assisted-suicide-talking-points ¡Oposición a la legalización del suicidio asistido! ¡El suicidio asistido es mala medicina, una receta para el abuso! Los llamados salvaguardias son vanos. Demasiado peligroso: Muchas organizaciones de discapacidad y la Asociación Médica de Estados Unidos se oponen a la…

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

June 6, 2013"end of life", death through denial, dredf, futile care, Institute of Medicine, life-ending decisions, Marilyn Golden, national disability rights network, NDRN, Our News & Commentary Blog, protection and advocacy, Surrogate Decisions & GuardianshipDiane Coleman

…are Committee sets aside a portion of its meeting agenda to receive public comments. At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input concerning the composition of the Committee, particularly the lack of disability representation. We didn’t receive a response to that submission, nor did the composition of the Committee c…