…brief – she was allegedly killed after only ten days. Disability Advocates Call for Restraint and Responsibility in Murder Coverage (Not Dead Yet Press Release, June 22, 2006) For more on Katie and how her family remembers her, please check out the discussion at Autism Vox. Michael McCarron has been discussing Katie, his family, his grief and his frustrations with other parents and autistic advocates. Check out these articles: Katie McCarron, Char…
…following personal story involving some disturbing communications from medical professionals a couple years ago when I had some acute respiratory problems. Question 1: If you are an individual living with a serious progressive illness or condition, or a loved one of an individual please describe your experiences receiving care. Your stories may include how you have talked with health care providers, your family, and friends; how you have discussed…
…or workers at Tsukui Yamayuri En (Tsukui Lily Garden) to make an emergency call to the police after Uematsu entered the facility by breaking a window at around 2 a.m. Tuesday. Uematsu told investigators that he “tied up” facility staff and made them hand over the keys to the residential areas. The 19 victims—nine men and 10 women ranging in age from 19 to 70—were all found in the residential areas, which are divided into eight sectors, each having…
December 20, 2013 Bernard Hammes, Ph.D. Director of Medical Humanities and Respecting Choices Gundersen Health System 1900 South Avenue La Crosse, WI 54601 Dear Dr. Hammes: The purpose of this letter is to express the deep concerns of the undersigned individuals and organizations pertaining to the Gundersen Health Care System Respecting Choices advance care planning documents entitled “Tube Feeding: What You Should Know” and “Help With Breathing:…
…nd euthanasia as deadly forms of discrimination against disabled and chronically ill people. We are pleased to see the proposed amendments to Rule 1557, which will have a tangible, positive impact on disabled people in healthcare settings. As you continue in the rulemaking process, we ask that you consider the following barriers to equitable healthcare for disabled people, particularly discrimination related to clinical algorithms in healthcare de…
