Not Dead Yet Comments on the Proposal to Update and Clarify Language in the DCD (Donation after Cardiac Death)

…R, Organ Donation After Cardiac Death, N Engl J Med 357;3, p. 212, July 19, 2007.) It’s difficult to escape the conclusion that the 2012 proposal language has been manipulated to avoid flagging disability groups that represent people who are now classified as potential DCD candidates. At the same time, the language encourages institutions to tap into “currently unrealized donor potential” by notifying them of the eligibility of these same groups….

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

…o read this blog already know, the Institute of Medicine’s Transforming End-of-Life Care Committee sets aside a portion of its meeting agenda to receive public comments. At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input concerning the composition of the Committee, particularly the lack of disability representation. We did…

NDY Comments on Adult Protective Services Guidelines – Health Care Decision-Making

…eople with disabilities in the context of what is often referred to as “end-of-life” care. We support the comments submitted by the Autistic Self Advocacy Network, but wish to add comments specific to the issues of health care decision making. Introduction A couple of weeks ago, Not Dead Yet was contacted by two sisters who are daughters of a woman in the hospital. They claimed that a third sister had decided to withhold tube feeding and fluids fr…

Rochester, NY: “Don’t buy into ‘aid in dying’” Guest Column by NDY’s Stephen Drake

…luded under the link: Oregon Dept. of Human Services Press Release (March 4, 2005) DHS news release March 4, 2005 Contact: Bonnie Widerburg (503) 731-4180 Program contact: Richard Leman (503) 731-4273 No authority to investigate Death with Dignity case, DHS says   The Oregon Department of Human Services has no authority to investigate individual Death with Dignity cases, officials said Friday. The state law authorizing physician-assisted suicide n…

NDY and Center for Disability Rights Comment Letter to New York Medicaid Opposing “Conversation Ready” Project As a Way to Save Money

…an incurable disease and were suffering a great deal of pain. [Views on End-of-Life Medical Treatments, November 21, 2013, http://www.pewforum.org/2013/11/21/views-on-end-of-life-medical-treatments/] The “Conversation Ready” project is focused on safety net providers. As such, the following Core Component is extremely deceptive and will incentivize “choosing” death over living with a disability. Identify care coordinators to work with community ba…