Category Archives: futile care

NDY Comment on Comment on Proposed Texas Futility Regulations

ableism, advance directives, better dead than disabled, ethics committee, futile care, futility, Health care decision-making, life-sustaining treatment, Lisa Blumberg, Our News & Commentary Blog, public comment, quality of life judgments, , , , ,

July 12, 2024 HHS Office of Inspector General – Chief Counsel Division P.O. Box 85200 Austin, Texas 78708 Email: IG_Rules_Comments_Inbox@hhsc.state.tx.us RE: Proposed Regulations published in the June 14, 2024 Texas Register Dear Chief Counsel: Not Dead Yet is a national disability rights organization focused on combatting disability- based healthcare discrimination, particularly in the context of … Continue reading NDY Comment on Comment on Proposed Texas Futility Regulations →

Sad News: The Passing of Disability Rights Attorney Andres Gallegos

ableism, better dead than disabled, futile care, health disparities, Jules Good, life-ending decisions, medical discrimination, Michael Hickson, Our News & Commentary Blog, , ,

We learned of this yesterday in a message shared by his family: It is with tremendous sadness that we share the passing of our father. Andrés passed away on the afternoon of December 1st, surrounded by his family and wrapped in love. While there will never be a time that we are ready to say … Continue reading Sad News: The Passing of Disability Rights Attorney Andres Gallegos →

Lisa Blumberg: Recent Medscape Survey Indicates that Doctors are Divided on Life and Death Issues

"end of life", aid in dying, assisted suicide, futile care, futility, Health care decision-making, healthcare rationing, life-sustaining treatment, Our News & Commentary Blog, passive euthanasia, quality of life judgments, treatment withdrawal, , ,

Recent Medscape Survey Indicates that Doctors are Divided on Life and Death Issues by Lisa Blumberg Medscape is an online resource for healthcare professionals. It provides medical news and information and does surveys on current issues. (1) Its 2022 survey of 4100 U.S. doctors on “Right and Wrong in Medicine: Life, Death and Wrenching Choices” … Continue reading Lisa Blumberg: Recent Medscape Survey Indicates that Doctors are Divided on Life and Death Issues →

30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination

discrimination, dredf, futile care, futility, health disparities, healthcare rationing, HHS, life-sustaining treatment, medical bigotry, medical discrimination, organ transplants, Our News & Commentary Blog, Patients Rights Action Fund, Quality Adjusted Life Years, , ,

Not Dead Yet, with partners the Disability Rights Education & Defense Fund and the Patients Rights Action Fund, have assembled a total of 30 disability rights and racial justice organizations to support further regulatory action by the U.S. Department of Health and Human Services Office for Civil Rights. Specifically, the groups are urging the formal … Continue reading 30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination →

Michael Hickson: Disability Organizations Challenge Medical Futility & Surrogate Decisions

ADAPT, bioethics, ethics committee, futile care, futility, Health care decision-making, healthcare rationing, life-ending decisions, life-sustaining treatment, medical discrimination, Michael Hickson, national council on independent living, Our News & Commentary Blog, surrogate decision making, Surrogate Decisions & Guardianship, treatment withdrawal, , , ,

On July 24th, ADAPT of Texas filed a complaint with the federal Department of Health and Human Services Office for Civil Rights (OCR) concerning the death of Michael Hickson, a Black Disabled man, at St. David’s South Austin Medical Center. The complaint called for . . . “. . . an investigation of St David’s … Continue reading Michael Hickson: Disability Organizations Challenge Medical Futility & Surrogate Decisions →