Michael Hickson: Disability Organizations Challenge Medical Futility & Surrogate Decisions

August 6, 2020ADAPT, bioethics, ethics committee, futile care, futility, Health care decision-making, healthcare rationing, life-ending decisions, life-sustaining treatment, medical discrimination, Michael Hickson, national council on independent living, Our News & Commentary Blog, surrogate decision making, Surrogate Decisions & Guardianship, treatment withdrawalADAPT, futility, Michael Hickson, National Council on Independent Living, Surrogate decision makingDiane Coleman

…of efforts to challenge the Texas law, including a recent appellate court ruling in another Texas case involving Tinslee Lewis, previously covered in this blog. The new July 24 court ruling has found the dispute resolution provisions in the Texas Advance Directives Act to be sorely lacking in constitutional due process protections, stating that a hospital: “. . . [I]n invoking and following Section 166.046’s committee review process, failed to pr…

Not Dead Yet Comment On Draft COVID-19 Vaccine Allocation Framework

September 4, 2020bioethics, COVID-19, health disparities, healthcare rationing, lifeboat ethics, medical discrimination, Our News & Commentary Blog, public commentCoalition of Citizens with Disabilities, COVID-19, COVID-19 Vaccine, public commentDiane Coleman

…edges that the list could evolve as more research becomes available. It’s crucial that disability data be gathered in any such research going forward. While specific individual diagnoses may be viewed as “low incidence” and therefore may be treated as “unworthy” of research consideration, the medical community’s discrimination against people with disabilities has a profoundly negative collective impact on disabled people in the context of COVID-19…

John Kelly Testifies At Massachusetts Health Equity Task Force Public Hearing

September 16, 2020assisted suicide, COVID-19, health disparities, healthcare rationing, john kelly, Massachusetts, medical discrimination, Our News & Commentary Blog, Second Thoughts, suicide preventionCOVID-19, healthcare rationing, John Kelly, medical discrimination, suicide prevention, TestimonyDiane Coleman

…To conclude, disabled people in this state, as much as anyone, deserve equal medical care and suicide prevention services. We disabled people are human beings who demand full respect from our state. Thank you. …

NDY In Solidarity: Speaking Out Against Racism

December 23, 2020Anita Cameron, disability rights, inciting violence, media coverage, Our News & Commentary Blog, racismAnita Cameron, racismDiane Coleman

…ageous call to bring lynching back! It descends to the grotesque depths of human capacity for hatred and violence. And it’s one of too many comments NDY and Anita have received in recent days. There have also been many Facebook comments and Anita Cameron has reported receiving death threats by direct message. I know there are people out there who will want to know more, trying to find some way to shift some blame to Anita for becoming a target of…

Disability Rights Leadership Institute on Bioethics: Advancing the Disability Rights Perspective on Bioethics Issues

May 2, 2014Amy Hasbrouck, ari ne'eman, ASAN, Autistic Self-Advocacy Network, bill peace, bioethics, Bob Kafka, dredf, Liz Carr, national council on independent living, NDRN, Norm Kunc, Our News & Commentary Blog, Toujours Vivant-Not Dead YetAutistic Self Advocacy Network, bioethics, Diane Coleman, Disability Rights Leadership Institute on Bioethics, Dredf, Liz Carr, Marilyn GoldenDiane Coleman

…k our generous supporters: Aging With Dignity, Association of Programs for Rural Independent Living, Yoshiko Dart, Gail Ludwig and Clarissa Kripke, Michigan Disability Rights Coalition, Montanans Against Assisted Suicide, Patients’ Rights Action Fund and United Spinal. I also want to thank the Center for Disability Rights for designing and printing our conference programs and sending their extraordinary executive administrative assistant Linda Tay…