Press Release: Disability Group Urges Institute of Medicine (IOM) to Remedy “Glaring Omission” in Membership on End-of-Life Committee

…al care and delivery, resources and workforce, economics, spirituality and compassion.” Public comment on the list of provisional appointments to the Committee was requested in the form of online submission. “Our highest priority is the addition of a qualified disability expert to the Committee,” Coleman added. In submitting its recommendation of Kelly Buckland, Executive Director of the National Council on Independent Living, Not Dead Yet provide…

Autistic Writer/Blogger/Activist Amanda Baggs Facing Life-Threatening Discrimination in Vermont Hospital

…ic woman who writes brilliantly, doesn’t use speech as her primary mode of communication and also lives with a variety of conditions, one of which has become quite serious in terms of being life-threatening. Her friend Laura T, aka “webmuskie” around the internet, wrote us that after the last of several bouts with aspiration pneumonia, Amanda had been admitted to the hospital to treat the effects of the gastroparesis that was at the root of the pr…

Canadian Proposals for Assisted Suicide Eligibility for Mental Health Conditions

…o die. The link between mental illness and the wish to die also calls into question a person’s ability to make a free and informed decision to end their life. In a Dutch study of assisted suicides, in 24% of cases, there was disagreement among the doctors who approved the euthanasia about whether the person was competent, and whether all possible treatment options had been tried. While 74% of people who asked for AS/E in one study had depression,…

Acclaimed 2024 BBC Documentary “Better Off Dead?” to be Screened in Washington, D.C.

…taff, agency staff, and the press. Advanced registration required: https://www.eventbrite.com/e/better-off-dead-a-documentary-screening-with-liz-carr-tickets-1007817738987 Sponsored by: Patients’ Rights Action Fund (https://PRAF.org/), Not Dead Yet (https://notdeadyet.org/), and the Disability Rights Education and Defense Fund (https://DREDF.org/). Interviews: Carr will be available for interviews throughout her Washington visit, with availability…

ADAPT of Texas Protests Hospital Killing of Michael Hickson, A Black Disabled Man

…when his wife asked for a kiss over FaceTime. See the video below: https://www.youtube.com/watch?v=ozh1jV4XjWI&feature=youtu.be Then in 2020, he contracted COVID-19 from a staff member in his nursing home and developed pneumonia. He was hospitalized at St. David’s South Austin Medical Center, but doctors there refused to treat him, allowing him to die. In a recorded conversation between the doctor and Melissa, she was told that he would not receiv…