Press Release: Disability Group Urges Institute of Medicine (IOM) to Remedy “Glaring Omission” in Membership on End-of-Life Committee

…cently formed Committee on Transforming End-of-Life Care to remedy what it called “glaring omissions.” The group recommended Kelly Buckland, Executive Director of the National Council on Independent Living, and Dr. Ira Byock, Director of Palliative Medicine at Dartmouth Hitchcock Medical Center. Rochester, NY (PRWEB) January 30, 2013 On Tuesday, January 29, 2013, Not Dead Yet submitted recommendations that two new members be appointed to the Insti…

NDY Public Comment on OPTN Proposal Regarding Living Organ Donation by Persons with Certain Fatal Diseases

…having presumptions about the quality of their lives influence the way medical providers…respond to them. ” [1] The Committee’s statement of the problem leads in the wrong direction. It sees the problem as the reluctance of transplant hospitals to approve persons with certain fatal diseases for living donation due to concerns over violating informed consent policy requirements and because all living donor deaths within two years of the organ donat…

Not Dead Yet and Respecting Choices Announce Successful Collaboration

…Ps and ventilators, potentially discouraging health care consumers and medical professionals from using these life-sustaining devices except for short-term recovery and not as part of a viable disability lifestyle. The Not Dead Yet open letter was signed by over thirty disability organizations as well as twenty-five individuals who have successfully used one or more of these devices for years, and in some cases for decades. In response to the lett…

Not Dead Yet and Respecting Choices Announce Successful Collaboration

…Ps and ventilators, potentially discouraging health care consumers and medical professionals from using these life-sustaining devices except for short-term recovery and not as part of a viable disability lifestyle. The Not Dead Yet open letter was signed by over thirty disability organizations as well as twenty-five individuals who have successfully used one or more of these devices for years, and in some cases for decades. In response to the lett…

Me Before You Message & Sign On Letter to Warner Brothers

…es of this film in any form. We have prepared a letter to Warner Brothers, calling for such a PSA. The letter is below. We are requesting that national, state and local disability organizations sign onto this letter by July 25. Please share this with organizations you know and urge them to sign on by emailing Diane Coleman (dcoleman@notdeadyet.org) the following information: Organization name: Location City & State: Is Organization National, State…