The Passing of Marca Bristo Is A Disturbance In the Force

…as well, and were a major part of our 2014 protest in Chicago against the World Federation of Right To Die Societies. Marca’s advocacy staff generously handled advance logistics for the action, and Marca spoke movingly at our rally. Insightful, strategic, influential, mission driven, irreplaceable. Her dedication touched and bettered the lives of countless people with disabilities across decades, across many struggles. With Marca, the phrase “Res…

Supplementing Your Advance Directive With A Video

…seconds. The goal is to convey essential information to physicians making crucial decisions (perform manual chest compressions? insert a breathing tube?) in time-pressed emergency medical situations. [Institute founder Dr. Ferdinando] Mirarchi helps draft scripts after taking a careful medical history, explaining various types of medical situations that might arise, and discussing clients’ goals and values in considerable depth. And here’s my favo…

Anita Cameron Awarded for Service to the Self-Advocacy Movement

…ed 131 times fighting for disability rights—and she’s not done yet (Quartz News, 7/22/17) The ASAN gala event featured a keynote address by Judy Heumann, an internationally recognized leader in the disability community and lifelong civil rights advocate for people with disabilities. ASAN’s Executive Director Julia Bascom gave a powerful speech and call to action at the event as well. Congratulations to Anita Cameron! We are *very thankful* to be w…

John Kelly’s Testimony Against Massachusetts Assisted Suicide Bill HR 1194

…th benefits for many old, ill, and disabled people. Cost-cutting is in the news. Given this reality, assisted suicide takes choices away. It’s no choice when every year, doctors misdiagnose 12 million people and thousands “graduate” from their six-month hospice benefit. Ted Kennedy was told he had 2-4 months to live. He lived an extra year. John Norton of Florence testified in 2012 that when he was diagnosed with ALS, he would have used assisted s…

ASAN Announces 7th Annual Day of Mourning – Join in 2018 Events Across U.S.

…parents and caregivers who murder disabled children. And we have seen both news and entertainment media continue to portray these murders in a sympathetic light. We hold the Day of Mourning vigils to draw attention to these injustices, to commemorate the lives of victims, and demand justice and equal protection under the law for all people with disabilities. This would not be possible without the vital work of our volunteer site coordinators. Clic…