…ecognition from New Mobility for trying to save Jerika’s life.] Last July, news broke that Appleton, Wisconsin 14-year-old Jerika Bolen had decided to die because of the extreme pain she was in, pain attributed to her genetic condition, spinal muscular atrophy (SMA) type II. While the media celebrated her suicidality as “brave” and “inspirational” in the face of tragic, “wheelchair-bound” suffering, disability rights advocates with SMA and similar…
…parents and caregivers who murder disabled children. And we have seen both news and entertainment media continue to portray these murders in a sympathetic light. We hold the Day of Mourning vigils to draw attention to these injustices, to commemorate the lives of victims, and demand justice and equal protection under the law for all people with disabilities. This would not be possible without the vital work of our volunteer site coordinators. Clic…
…Liz is also hitting the media – talking about her musical and the underrepresented disability perspective on assisted suicide and euthanasia. The following is a clip from an Australian morning news show. The closed captioning on this video is of a lower quality than in the previous one, but should allow readers to follow – if you can read really fast. …
…legislation – if it were to pass the Senate and become law – will have a truly devastating impact on seniors and people with disabilities. It will: – Destroy the insurance protections for individuals with pre-existing conditions that allow them to receive necessary healthcare services; – Undercut access to vital Medicaid healthcare as well as long-term services and supports (LTSS) needed by older and disabled Americans; and – Eliminate the incent…
…Home Health Workers (08/28/23) NDY Submits Public Comment On Proposed ACA Rule 1557 Change (10/04/22) Oppose the Flawed New York DNR Restoration Bill A204/S4685 (05/10/22) NDY Public Comment on CDC Draft Updated Clinical Practice Guideline for Prescribing Opioids (04/11/22) NDY Public Comment On Federal Healthcare Interim Final Rule In Response To COVID (01/04/21) NDY Public Comment on Draft PCORI Principles (11/13/20) Not Dead Yet Comment On Dra…
