PRESS RELEASE (English and French): Disability Rights Activists Begin 2nd Day of Protests Against Pro-Euthanasia Conference in Chicago

IMMEDIATE RELEASE
September 19, 2014

CONTACT

Diane Coleman 708-420-0539;  Amy Hasbrouck 450-921-3057

Disability Rights Activists Begin Second Day of Protests

Against International Euthanasia Group Meeting in Chicago

Canadian and Québécois activists will join American Disabled for
Attendant Programs Today (ADAPT), Not Dead Yet (NDY) and other
disability rights groups in Chicago September 18-20 to protest the
World Federation of Right to Die Societies conference. Amy
Hasbrouck, director of Toujours Vivant/Not Dead Yet Canada and
Nic Steenhout, director of Living with Dignity, will hold a press
conference on Friday, September 19 at noon at 511 N. Columbus
Drive, Chicago, to respond to Canadian speakers at the conference.
“A busload of ADAPT activists just arrived last night to join us after a week of protests
for home care and freedom from nursing facilities,” said Diane Coleman, President and
CEO of Not Dead Yet USA. “We’re also thrilled to have representatives of our sister
organization in Canada join us for this three day protest vigil. It demonstrates that the
disability rights opposition to legalized euthanasia is growing and is, increasingly, a
worldwide phenomenon.”
“There is no public consensus for euthanasia in Québec, or in Canada” said Steenhout.
“Surveys show that people don’t understand that ‘aid in dying’ means giving a lethal
injection. When people are informed of what the terms really mean, they don’t support
the idea.”
“This is an important moment for Canada,” said Hasbrouck. “Do we want to be a
country that says some suicidal people will get suicide prevention while other suicidal
people will be killed? I think that goes against our values of fairness, equality and
solidarity.”
Hasbrouck points out that both the Québec euthanasia law and the federal bill could
lead to the deaths of people with disabilities.
“The Québec law does not define what it means to be at the ‘end of life’” she said, “nor
does it specify a waiting period before the euthanasia.” She added that the federal bill
doesn’t require that the person have a terminal illness to be eligible for assisted death.
Toujours Vivant-Not Dead Yet (TVNDY) is a project of the Council of Canadians with
Disabilities to represent the disability opposition to assisted suicide and euthanasia
across the country. Living with Dignity / Vivre dans la dignité is a Québec based,
secular group opposing euthanasia in that province, the second largest in the country.
Both groups were active in opposing the euthanasia law recently adopted in Québec.

###

POUR DIFFUSION IMMÉDIATE    19 septembre, 2014

 

 

Contact :
Amy Hasbrouck, 450-921-3057
Nic Steenhout, 438-931-1233

Des activistes canadiens et québécois se joindront aux groupes American Disabled for
Attendants Programs Today (ADAPT), Not Dead Yet (NDY) et à d’autres groupes de
défense des droits des personnes en situation de handicap à Chicago du 18 au 20
septembre pour protester contre la conférence de la Fédération mondiale de Droit de
mourir.
« Il n’y a pas consensus public pour l’euthanasie au Québec ou au Canada », a déclaré
Nicolas Steenhout, directeur général de Vivre dans la Dignité. « Les sondages montrent
que les gens ne comprennent pas que “l’aide médicale à mourir”, c’est donner une
injection létale. Les gens n’appuient plus l’idée quand ils sont informés de ce que les
termes signifient vraiment ».
« C’est un moment important pour le Canada », a déclaré Amy Hasbrouck, directrice de
Toujours Vivant-Not Dead Yet. « Voulons-nous être un pays qui dit que certaines
personnes suicidaires recevraient des services de prévention du suicide alors que
d’autres personnes suicidaires seront tuées? Cela va à l’encontre de nos valeurs
d’équité, d’égalité et de solidarité ».
Hasbrouck souligne que tant la loi sur l’euthanasie du Québec et le projet de loi fédéral
pourraient conduire à la mort de personnes en situation de handicap.
« La loi du Québec ne définit pas le terme “fin de vie” », dit-elle, « et le projet de loi
fédéral n’exige pas que la personne ait une maladie terminale pour être admissible à
l’aide au suicide ». Elle ajoute que le projet de loi fédéral n’exige pas que la personne
ait une maladie en phase terminale pour être admissible à l’aide au suicide.
Toujours Vivant-Not Dead Yet (TVNDY) est un projet du Conseil des Canadiens avec
déficiences pour représenter l’opposition au suicide assisté et à l’euthanasie à travers le
pays par les personnes en situation de handicap. Living with Dignity/Vivre Dans La
Dignité est un groupe laïque basé au Québec opposant l’euthanasie dans cette
province, la deuxième plus grande province dans le pays. Les deux groupes étaient
actifs dans l’opposition de la loi sur l’euthanasie adoptée récemment au Québec.
TVNDY et Vivre dans la Dignité tiendront une conférence de presse le vendredi 19
septembre à midi pour réagir à des conférenciers canadiens à la conférence.

###

Chicago NDY Protest of International Pro-Euthanasia Conference – Day 1

Yesterday, September 18th, was the first day of NDY’s protest and vigil at the World Federation of Right to Die Societies Conference.

I’m pushed for time this morning, so this will be brief. I’ll post more here later today.

There were many speakers opening up the protest yesterday in Chicago (full list to come) – below is the address given by NDY’s founder and president Diane Coleman:

The incredible activists of Not Dead Yet, that’s who you are.

And it’s wonderful to see all my friends in Chicago again.  Thanks to Progress Center and Access Living for doing so much to make our voices heard this week as we protest the World Federation of Right to Die Societies.  Thanks to LIFE CIL, the Will-Grundy Center in Illinois, and TRIPIL from Pennsylvania, and folks who’ve come from as far away as Colorado and Canada.  You’re amazing.

My long time mentor on this issue is Carol Gill, who I first met on a picket line trying to save a young woman with cerebral palsy from a suicide wish that the Hemlock Society exploited.  We helped buy her time and, eventually, she didn’t go through with it and lived.  Three decades later, we’re still fighting this issue and sometimes I wonder if society will ever get it that we deserve the same suicide prevention as everybody else.

When Not Dead Yet started up 18 years ago, the three assisted suicide advocacy organizations in the U.S. each got a white male wheelchair user added to their Boards to try to neutralize our impact.  It didn’t work very well.

If you wonder whether what we are doing is making any difference, this year, with the help of John Kelly, our New England Regional Director, the disability community played a key role in defeating assisted suicide bills in NH, MA and CT.  Are we a force to recon with?  We got a little more confirmation recently.  Some of you may have heard that the attorney who worked many years for Compassion & Choices (formerly the Hemlock Society) was recently hired by the Disability Rights Legal Center in Los Angeles.  It seems that California is a target state next year.

Fortunately, we have the Disability Rights Education and Defense Fund, in our corner, right there is California.  But there’s work to be done.  This is National Suicide Prevention Month and we’re here to deliver a message that equal rights include the right to equal suicide prevention, not a streamlined path to assisted suicide and euthanasia.  What we know is this:

We want assistance to live, not die.

We are not better off dead than disabled.

We don’t need to die to have dignity.

We are strong and proud, and we are

NOT DEAD YET!!

You can read local coverage of the conference and protest from the local CBS affiliate here.

To get involved at home and/or get the latest updates on the protest, you can do the following:

1. If you use twitter, follow @NotDeadYetUSA on twitter.
2. Facebook users should “like” the Not Dead Yet page.

Share any updates with your friends and followers. If you have a blog, or use any other web medium to write, this would be a good time to educate your readers on the issues.

Remember, things are scheduled to get started at noon central time today. But these things have a way of running late, so don’t panic if you don’t hear anything at the crack of noon.

Press Release: Disability Rights Activists to Protest International Euthanasia Group Meeting in Chicago

IMMEDIATE RELEASE                    CONTACTS
September 17, 2014                             Diane Coleman 708-420-0539
                                                                       Gary Armold 773-425-2536

The disability rights group Not Dead Yet announced today that it would lead a three-day protest vigil against the World Federation of Right to Die Societies during the Federation’s biennial meeting being held in Chicago. The American group Final Exit Network is hosting the meeting, which runs from September 17-20 at the Embassy Suites Chicago. The group has scheduled a rally to open the protest vigil at 511 North Columbus Drive on September 18 at 12 PM.

”We are here to contradict the message of these groups that it’s better to be dead than disabled,” said Not Dead Yet president Diane Coleman of New York.

The meeting is being hosted by the Final Exit Network, an American group known for its use of “Exit Guides” to instruct and assist people with “irreversible physical illness, intractable pain, or a constellation of chronic, progressive physical disabilities” to kill themselves using “Exit Bags” filled with helium.

The 2012 PBS documentary, “The Suicide Plan,” included statements and video in which Final Exit Network leader Ted Goodwin admitted and demonstrated holding the person’s arms down to prevent them from pulling the Exit Bag off of their head.

“This is a collection of reckless suicide fanatics,” said John Kelly of Second Thoughts Massachusetts, whose group was instrumental in defeating assisted suicide bills and a referendum in that state.

The World Federation of Right to Die Societies was organized in 1980 to bring together the various groups in Europe and Anglophone countries which promote euthanasia and assisted suicide. The Federation last met in the United States in 2000, when it was also protested by Not Dead Yet in Boston.

“These are the people that we have seen in the news, people who condoned the suicides of the Belgian twins who were losing their sight, or of the woman who was afraid she would not be able to see a stain on her shirt.” said Amy Hasbrouck from the Canadian group, Toujours Vivant/Not Dead Yet, which is working to defeat Canadian initiatives that will be promoted at the conference.  Hasbrouck and other Canadians will be joining the Chicago protest vigil.

Disability Rights Community Responds to the Tucker Hire

September 13, 2014

Board of Directors
Disability Rights Legal Center
800 S. Figueroa St., Suite 1120
Los Angeles, CA 90017

Dear Board members, Disability Rights Legal Center:

We understand you have hired Kathryn Tucker as the new executive director of DRLC.

Many of the signatories to this letter have worked with DRLC for years, enjoyed our working relationship toward furthering disability rights, and appreciated the work of DRLC.

We wish to engage in dialogue with you about the serious concerns we have over Ms. Tucker’s work in her previous position at Compassion & Choices that has placed members of the disability community in significant danger.

As you probably know, many prominent disability rights organizations across the U.S. have taken formal positions opposing assisted suicide laws. The legalization of assisted suicide is a very serious problem, and is of the utmost importance to many in the disability community. Ms. Tucker’s actions have significantly and directly aided in establishing assisted suicide laws, and she has materially contributed to the efforts toward their further legalization, in state after state. While Ms. Tucker’s work on pain relief is laudable, it is overshadowed by her work toward the legalization of assisted suicide through her leadership role at Compassion & Choices.

As organizations many of which have partnered with DRLC in the past, and which hope to have productive collaborations with you in the future, we would be very troubled if the hiring of Ms. Tucker were seen as a message to the disability community—or to society at large—that the DRLC has taken, or may take in the future, an opposing position to that of the established disability community on the legalization of assisted suicide, isolating itself from its natural allies.

Recognizing the difficulties raised by this past work of Ms. Tucker, we hope you will engage with us in dialogue about this issue and how it might play out, if at all, during her tenure at DRLC.

If you are unfamiliar with the issue’s complexities or with how extensively it is misunderstood by the general public, we refer you to http://dredf.org/public-policy/assisted-suicide/ to learn more.

We suggest a teleconference with you—and, if you like, Ms. Tucker and/or other staff—to consider the above questions.

On behalf of the organizations and individuals who have signed on below, please communicate with Marilyn Golden, Senior Policy Analyst, Disability Rights Education & Defense Fund (DREDF), mgolden@dredf.org, (510) 549-9339.

We look forward to hearing from you soon.

Sincerely,

(Partial list of sign-ons, in alphabetical order)

• ADAPT
• Association of Programs for Rural Independent Living (APRIL)
• Autistic Self Advocacy Network (ASAN)
• Boston Center for Independent Living (BCIL)
• Center for Disability Rights, New York State (CDRNYS)
• Civil Rights Education and Enforcement Center – Tim Fox and Amy Robertson (CREEC)
• Communities Actively Living Independent & Free (CALIF) – Lillibeth Navarro, Executive Director
• Community Access Project, Massachusetts
• Disability Rights Education & Defense Fund (DREDF)
• Duane French, a founding member of the Alaska and Washington Chapters of Not Dead Yet
• Steve Gold, Attorney
• Independent Living Center of Southern California (ILCSC)
• Little People of America (LPA)
• Virginia Knowlton Marcus, Executive Director, Maryland Disability Law Center*
• James D. McGaughey, JD, former executive director of the Connecticut Office of Protection and Advocacy for Persons with Disabilities
• MPOWER
• National Council on Independent Living (NCIL)
• National Coalition for Mental Health Recovery (NCMHR)
• Not Dead Yet (NDY)
• Regional Center for Independent Living, New York
• Stephen A. Rosenbaum, John & Elizabeth Boalt Lecturer, U.C. Berkeley*
• Second Thoughts Connecticut
• Second Thoughts Massachusetts
• Michelle Uzeta, former legal director, Disability Rights Legal Center
• World Institute on Disability (WID)

* For identification purposes only

[Editor’s Note:  The Disability Rights Education & Defense Fund coordinated coordinated disability organizations that wanted to respond.]

Press Release: NDY & 6 Other National Disability Groups Submit Friend-of-the-Court Brief in New Mexico Assisted Suicide Appeal

[Editor’s Note: We’ve previously reported on the New Mexico district court ruling on assisted suicide here and here, among others.  The state Attorney General (AG) has appealed the ruling.  NDY’s press release about our brief submitted in support of the AG, joined by 6 other national disability rights groups, is both below and online at PRWeb.  The brief itself is available as an attachment to the PRWeb release and on the NDY site under “Court Cases” here.]

On August 22, 2014, Not Dead Yet submitted a Disability Rights friend-of-the-court brief in support of the New Mexico Attorney General’s appeal seeking to overturn a district court ruling that the New Mexico constitution contains a right to assisted suicide (Morris v. King, Case No. 33,630, Court of Appeals of the State of New Mexico).  Six other national disability rights organizations joined in the brief:  ADAPT, the American Association of People with Disabilities, the Autistic Self Advocacy Network, Disability Rights Education and Defense Fund, the National Council on Independent Living, and the United Spinal Association (collectively “the Disability Rights Amici”).

The Disability Rights Amici are represented by Lara Katz of Montgomery and Andrews in Santa Fe, New Mexico, and Steve Gold, a nationally known disability rights attorney based in Philadelphia.  The Motion that accompanies the brief states why the groups believe that the disability rights perspective should be considered by the Court of Appeals:

Their members, as well as other people with severe disabilities, are the potential targets of physician-assisted suicide.  Their members have faced family and physicians who have actively deprived them of fundamental rights and liberties that others take for granted.  They have members whose physicians have mistakenly told them they have six months to live, but have lived far beyond that prognosis.  . . .  Some members’ families have been urged by physicians to remove life-sustaining treatment at a critical juncture and, after their families fought such recommendations, have survived and gone on to value their lives.  Some members initially contemplated suicide following a severe and life-threatening injury, but were denied that option under prior law, and went on to value their lives.

Each of the Disability Rights Amici brings a specific perspective to the policy debate about assisted suicide.  For example, the primary mission of ADAPT is to ensure that seniors and people with disabilities are not forced into nursing facilities, but have the choice to receive consumer directed long term care services in their own home.  “If the only alternative to death that those in power offer people who require assistance is poverty and segregation in nursing facilities, then it makes no sense to talk about assisted suicide as a ‘choice’”, said Bob Kafka, an ADAPT organizer based in Austin, Texas.

“As a person with a disability and a wheelchair-user, I’m proud that the disability community has overwhelmingly opposed the legalization of assisted suicide,” said Marilyn Golden, senior policy analyst with the Disability Rights Education and Defense Fund in Berkeley, California.  “It’s a deadly mix with our broken, profit-driven health care system, where financial pressures already play far too great a role.”

Many people with disabilities acquire them as a result of accidents or trauma, and their prognosis is often uncertain in the early stages.  “If assisted suicide had been legal in the past, even if it were supposedly only for those with ‘terminal’ conditions, many of us would not be here today,” said Kelly Buckland, executive director of the National Council on Independent Living. “I might not be here today, and I’m grateful that assisted suicide was not legal back then, and I’m committed to keeping it that way.”

“There is significant evidence that proponents of physician assisted suicide have never intended to stop at the terminally ill,” noted Ari Ne’eman, executive director of the Autistic Self Advocacy Network.  “Legislation introduced in New Hampshire in 2014 and prior years includes a definition of terminal illness so broad as to allow for a lethal prescription in response to any condition which shortens lifespan without a known treatment – even if the individual in question might have years or even decades of life remaining.  Assisted suicide advocates have been adept at using an incremental strategy by focusing on people who are terminally ill, but their broader policy agenda is already well documented.”

“Our basic position is that when some people get suicide prevention while other people get suicide assistance, and the difference is the person’s age, disability or health status, that’s a problem,” said Not Dead Yet’s president and CEO, Diane Coleman.  “It’s a problem of devaluation of people who are being told that others not only agree with their suicide, which is bad enough, but will even help them carry it out.  It’s a deadly form of discrimination and, as our brief says, it violates the Americans with Disabilities Act.”

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