A friend asked if I knew how many people have been medically killed since Covid-19. My answer is that there is no way to know. We know about Michael Hickson and we’re just learning about Sarah McSweeney and perhaps many others from a recent NPR investigation. However, when relatives agree, or at least don’t vociferously … Continue reading Carol Cleigh Sutton – DNR: Choice or Medical Murder?
At first, responding to the draft principles of the Patient-Centered Outcomes Research Institute (PCORI) seemed more complex than NDY could fit into our tight schedules. But the principles were in response to new language added to PCORI’s authorizing law: . . . In addition to the relative health outcomes and clinical effectiveness, clinical and patient-centered … Continue reading NDY Joined In PIPC Comment, and Filed Its Own, Regarding PCORI Principles
Anita Cameron, Not Dead Yet Director of Minority Outreach, testified at ADAPT’s “People’s Hearing” on October 2, 2020, to press for full federal funding for home and community based long term services and supports. Anita makes a passionate appeal for the preservation of the Affordable Care Act, which has provisions for people like her with … Continue reading Anita Cameron Testified At “People’s Hearing” for In-Home Services
On October 8, 2020, Not Dead Yet, National ADAPT, ADAPT of Texas and the Autistic Self Advocacy Network joined in a friend-of-the-court (“amicus”) brief filed by Texas attorney Michelle Hayes to support Tinslee Lewis and her mother’s case to maintain life support. The “strange bedfellows” amici groups include disability rights, religious and pro-life organizations. Tinslee … Continue reading NDY, National ADAPT, ADAPT of Texas and ASAN Join Amicus Brief In Tinslee Lewis Case
On October 7, the National Center for Law and Economic Justice filed a class action complaint on behalf of Not Dead Yet, NMD United, Disability Rights New York, NDY Board member Mike Volkman and other individual plaintiffs against New York Governor Cuomo and the NY Department of Health to challenge the state’s Ventilator Allocation Guidelines … Continue reading Not Dead Yet, NMD United, et al. Sue NY Governor On Ventilator Re-Allocation Guidelines
