The Charlie Gard case concerns a young British child with a very rare genetic condition that has currently left him unable to move, breathe or eat on his own. His parents wanted to take him to the United States for experimental treatment but his London doctors, believing he has suffered enough, wanted to turn off … Continue reading Lisa Blumberg: What Principles Should Govern Charlie Gard’s Case?
This is a followup to yesterday’s post about Chris Dunn. Not Dead Yet of Texas has issued a released a release regarding the “futility” decision being fought by the family of Chris Dunn. For Immediate Release Not Dead Yet of Texas has for the last 3 legislative sessions supported amending the Futile Care language in … Continue reading Not Dead of Texas Issues Statement on Chris Dunn “Futility” Case
It’s been a while since we’ve posted anything on it, but futile care policies have been an area of concern for NDY and other disability rights groups for many years. Things have been quiet for awhile, which isn’t really good news. We only hear about futile care issues if a family goes public – reaching … Continue reading New Futility Case in Texas
The National Council on Disability met on May 6th at the Ed Roberts Campus in San Francisco. This is a presidentially appointed Council that advises the Administration on disability policy. The Council always offers opportunities for public comment, and NDY has been asking NCD to help lead efforts to address abuses in health care decisions … Continue reading National Council on Disability Will Consider Proposal to Address Health Care Decisions Policies that Threaten the Lives of People With Disabilities
Many apologies for the delays in getting this out. Last week, there were many activities and events to mark the 23rd anniversary of the signing of the Americans with Disabilities Act (ADA). One of those events was a meeting of the National Council on Disability. Here’s the description and info from last week’s press release … Continue reading Diane Coleman Presents Comments on Futility at July 25 Mtg of National Council on Disability