Category Archives: national council on independent living

Not Dead Yet, ASAN and NCIL Weigh In on IOM Report on Dying in America

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The Institute of Medicine recently solicited organizational statements of commitment in connection with its report on Dying in America.  The IOM is holding a meeting on Friday, March 20 that’s open to the public and accessible online. Not Dead Yet committed to work on advance care planning and professional education.  To be honest, we aren’t … Continue reading Not Dead Yet, ASAN and NCIL Weigh In on IOM Report on Dying in America →

NDY Joins Autistic Self Advocacy Network, ADAPT and NCIL in Annual Day of Mourning

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To any media observer, a disproportionate number of people with disabilities who have been killed by their parents have autism.  Therefore, it’s not surprising that the Autistic Self Advocacy Network (ASAN) has led the way for all of us in publicly mourning these horrific tragedies. The following message is from ASAN: In the past five … Continue reading NDY Joins Autistic Self Advocacy Network, ADAPT and NCIL in Annual Day of Mourning →

It’s (Long Past) Time for the U.S. To Ratify the United Nations Disability Treaty

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I want to pass on a message I received about activities tomorrow in support of the United Nations Convention on the Rights of Persons with Disabilities (CRPD).  The rally is being sponsored by the National Council on Independent Living, one of NDY’s closest allies.  Here’s the information I received (excerpts): PLEASE Call your Senators!  And … Continue reading It’s (Long Past) Time for the U.S. To Ratify the United Nations Disability Treaty →

Disability Rights Leadership Institute on Bioethics: Advancing the Disability Rights Perspective on Bioethics Issues

Amy Hasbrouck, ari ne'eman, ASAN, Autistic Self-Advocacy Network, bill peace, bioethics, Bob Kafka, dredf, Liz Carr, national council on independent living, NDRN, Norm Kunc, Our News & Commentary Blog, Toujours Vivant-Not Dead Yet, , , , , ,

Months of work came to fruition on April 25 – 26, 2014 at the Crystal City Marriott in Arlington, VA.  Conference planning experts told us to expect a 10% no show rate, but out of our final count of 68 who signed up to attend (we had initially expected about 50), only 3 missed it.  … Continue reading Disability Rights Leadership Institute on Bioethics: Advancing the Disability Rights Perspective on Bioethics Issues →

Rochester Disability Community Remembers Disabled Victims of Domestic Violence, Deaf Victims of Euthanasia as Part of National Disability Mourning Day

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Rochester Disability Community Remembers Disabled Victims of Domestic Violence, Deaf Victims of Euthanasia as Part of National Mourning Day As part of a nation-wide Day of Mourning, local disability rights advocates will be holding a memorial service this Friday called “Remembering Lives Taken” to honor the lives of disabled people murdered by their families and … Continue reading Rochester Disability Community Remembers Disabled Victims of Domestic Violence, Deaf Victims of Euthanasia as Part of National Disability Mourning Day →