[For a PDF version of this article, go HERE.] I have an advanced neuromuscular disability. Six years ago, I went into respiratory failure. I now use a ventilator with a CPAP mask about 22 hours a day, without which I would die in a short time. As a disabled person who depends on life-sustaining treatment, … Continue reading NALA Facts & Findings: Assisted Suicide Laws and Ableism by Diane Coleman, J.D.
On November 2, Newsweek published an excellent op-ed by Matt Valliere, Executive Director of the Patients Rights Action Fund (PRAF), entitled The Brutal, Tragic, Consequences of Quality of Life Judgements. Though PRAF’s mission is focused on opposing assisted suicide laws, the op-ed does an uncommonly good job discussing other discriminatory and harmful medical practices that … Continue reading Matt Valliere On the Many Harms of Medical Quality of Life Judgments
A 2021 report prepared by the Free Migration Project and University of Pennsylvania Law Students entitled “Fatal Flights: Medical Deportation in the U.S.” is eye-opening and shocking. Usually, when one hears the frightening word “deportation”, one thinks of governmental action, officials dragging people from their homes and sending them out of the country. With medical … Continue reading Lisa Blumberg: The Little Known Issue of Medical Deportations by Hospitals
As July 26, the 31st Anniversary of the Americans With Disabilities Act, approaches, the National Council on Independent Living is holding its annual conference. NCIL has announced that its annual Advocacy Priorities Guide is now available, containing “specific information on the national legislative and policy priorities identified biannually by the NCIL membership.” NCIL’s Healthcare priorities include … Continue reading NCIL’s Advocacy Priorities Guide Includes Key NDY Policy Issues
[Ed. note: We previously reported on the court case discussed in the article below here: Not Dead Yet, NMD United, et al. Sue NY Governor On Ventilator Re-Allocation Guidelines.] The Pandemic Threatened Their Ventilators. Will NY Officials Change Course Before The Next Crisis? BY CAROLINE LEWIS MAY 27, 2021 When COVID-19 struck New York last spring, … Continue reading Coleman Quoted in Gothamist: The Pandemic Threatened Their Ventilators
