All posts by Diane Coleman

NDY Comment on Comment on Proposed Texas Futility Regulations

ableism, advance directives, better dead than disabled, ethics committee, futile care, futility, Health care decision-making, life-sustaining treatment, Lisa Blumberg, Our News & Commentary Blog, public comment, quality of life judgments, , , , ,

July 12, 2024 HHS Office of Inspector General – Chief Counsel Division P.O. Box 85200 Austin, Texas 78708 Email: IG_Rules_Comments_Inbox@hhsc.state.tx.us RE: Proposed Regulations published in the June 14, 2024 Texas Register Dear Chief Counsel: Not Dead Yet is a national disability rights organization focused on combatting disability- based healthcare discrimination, particularly in the context of … Continue reading NDY Comment on Comment on Proposed Texas Futility Regulations →

Elaine Marie Kolb – Haiku Against Medical Assisted Suicide: Ableism Kills Us

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Poor, old, disabled Weirdos, nuts, odd balls, queers, trash All expendable   Abandoned, ignored Ridiculed, isolated Suffering alone   Give up, go away We don’t want to look at you Ugly, pitiful   So undignified Unwanted, useless eaters Waste of resources   Some fates worse than death Rather be dead than like them That isn’t … Continue reading Elaine Marie Kolb – Haiku Against Medical Assisted Suicide: Ableism Kills Us →

NDY Comment on Hospice and Palliative Nurses Association’s Statement on “MAiD”

aid in dying, assisted suicide, health disparities, hospice, ira byock, Lisa Blumberg, long term services and supports, MAID, Our News & Commentary Blog, palliative care, public comment, suicide prevention, , , , ,

Not Dead Yet Comment on HPNA’s Statement on “Medical Aid in Dying” July 5, 2024 Not Dead Yet is a national disability rights organization focused on combatting disability based healthcare discrimination, particularly in the context of advanced or terminal illness. We are extremely disappointed that HPNA [Hospice and Palliative Nurses Association] would consider adopting a … Continue reading NDY Comment on Hospice and Palliative Nurses Association’s Statement on “MAiD” →

Lisa Blumberg: The 504 Regulations Now Explicitly Prohibit Healthcare Discrimination Based on Disability

better dead than disabled, Health care decision-making, health disparities, HHS, informed consent, life-sustaining treatment, Lisa Blumberg, medical discrimination, Our News & Commentary Blog, treatment withdrawal, , ,

The updating of the 504 Regulations by the Department of Health and Human Services under the Biden-Harris administration is historic. Various provisions included in the amendment interact and work together to promote equal access to healthcare for persons with disabilities. Not Dead Yet’s response to the  Department’s request for public comment when the updates were … Continue reading Lisa Blumberg: The 504 Regulations Now Explicitly Prohibit Healthcare Discrimination Based on Disability →

Ellen Leigh: Activists within the disability rights community have justifiable fears

ableism, aid in dying, assisted suicide, letters to the editor, Massachusetts, Our News & Commentary Blog, Second Thoughts, , ,

Second Thoughts Massachusetts member Ellen Leigh’s excellent letter appeared in the Boston Globe today: Jeff Jacoby’s column “For assistance in dying, please press 1” warns against the legalization of assisted suicide, especially highlighting its significant risks. As a disabled person, I share these concerns deeply. Activists within the disability rights community fear that legalized assisted … Continue reading Ellen Leigh: Activists within the disability rights community have justifiable fears →