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Bad Cripple Shares Scary Thoughts About How Many People with SCI Needlessly Die

First, housekeeping: I’m saving my thoughts, etc. on Terrie’s story until tomorrow. I’ve removed the “part 1” from the title of the blog post with her story since it really doesn’t belong there.

In the meantime, William Peace at BadCripple read Terrie’s story and it caused some scary thoughts and memories to surface:

Excerpt:

I vividly recall late one night asking a rehab nurse why there were no people with a high level SCIs on the ward. She looked at me with an odd expression and replied “think about it”. Naive, I thought and thought and could not think of an answer that made sense. The nurse shook her head and told me to raise my level of injury from T-3 to C-3 and asked me if I really wanted to live that sort of life. After a pause I said not but that was not up to me, people had the right to choose. Such a decision I thought was made by doctor, patient, and family. Again she shook her head. That decision, she told me, was made in the ER and operating rooms by doctors. Patients who would be dependent upon a respirator and unable to independently move died. “They were allowed to die with dignity” she told me.

The instance described in the excerpt is from some 30 years ago. Peace fears – as do I – that stories like Terrie’s (minus the survival) are becoming more common over time. Can we prove that? No. But the fact that it’s happening at all is an outrage.

And, btw, if some medical professional writes me to tell me this hardly ever happens… The fact that is that they won’t have any more hard data to base that belief on than I do in regard to my own suspicions. –Stephen Drake