Category Archives: better dead than disabled

Carol Cleigh Sutton: What is the function of movies like Me Before You?

[Editor’s Note: This is a guest blog by Carol Cleigh Sutton, an original Board member of NDY when we formed in 1996, and a long time disability activist.] I’ve spent some time thinking about why movies like Me Before You get made. After all, it’s not a bit original. From Whose Life is it, Anyway? … Continue reading Carol Cleigh Sutton: What is the function of movies like Me Before You?

ASAN Responds to GOP Debate on Vaccines: Not Better Off Dead Than Disabled

[Editor’s Note:  This awesomely strong and timely Autistic Self Advocacy Network’s response to the GOP debate remarks on autism and vaccines is reprinted with permission.] ASAN Statement on GOP Primary Debate Comments on Autism and Vaccination September 16, 2015 Despite a wealth of scientific evidence debunking any link between autism and vaccinations, tonight’s Republican primary … Continue reading ASAN Responds to GOP Debate on Vaccines: Not Better Off Dead Than Disabled

NDY Files Public Comment on CMS Proposal on Advance Care Planning

NDY’s comment letter can be summarized as follows:  We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than … Continue reading NDY Files Public Comment on CMS Proposal on Advance Care Planning

NDY Challenges NYS Medicaid Proposal to Save Money By Steering People to Choose Death Over Living With Disability

Not Dead Yet, the Center for Disability Rights, and 11 other NY based disability organizations, submitted public comments on the New York State Medicaid Delivery System Reform Incentive Payment Program (DSRIP) on May 28, 2014, alleging that one of the proposed projects would fund Medicaid providers to save money by steering people to choose death over … Continue reading NDY Challenges NYS Medicaid Proposal to Save Money By Steering People to Choose Death Over Living With Disability

Guest Blog by Cathy Ludlum: Better Dead Than Fed? NOT!

We in the disability community have a stronger appreciation than most people of the opportunities technology can bring.  Power wheelchairs and vans offer us mobility.  Voice-activated software and screen readers unleash the power of computers.  Environmental control systems allow us to manage things around the house, like opening doors and answering the phone. But some … Continue reading Guest Blog by Cathy Ludlum: Better Dead Than Fed? NOT!