Category Archives: better dead than disabled

Face To Face: Challenging the “Better Dead Than Disabled” Message

Two video projects led by people with disabilities, one in the U.S. and one in Canada, are challenging the mainstream message that it’s better to be dead than disabled. We all know that personal stories are often the most effective forms of communication, and that’s exactly what these projects offer in face-to-face communication. The U.S. … Continue reading Face To Face: Challenging the “Better Dead Than Disabled” Message

Carol Cleigh Sutton: What is the function of movies like Me Before You?

[Editor’s Note: This is a guest blog by Carol Cleigh Sutton, an original Board member of NDY when we formed in 1996, and a long time disability activist.] I’ve spent some time thinking about why movies like Me Before You get made. After all, it’s not a bit original. From Whose Life is it, Anyway? … Continue reading Carol Cleigh Sutton: What is the function of movies like Me Before You?

ASAN Responds to GOP Debate on Vaccines: Not Better Off Dead Than Disabled

[Editor’s Note:  This awesomely strong and timely Autistic Self Advocacy Network’s response to the GOP debate remarks on autism and vaccines is reprinted with permission.] ASAN Statement on GOP Primary Debate Comments on Autism and Vaccination September 16, 2015 Despite a wealth of scientific evidence debunking any link between autism and vaccinations, tonight’s Republican primary … Continue reading ASAN Responds to GOP Debate on Vaccines: Not Better Off Dead Than Disabled

NDY Files Public Comment on CMS Proposal on Advance Care Planning

NDY’s comment letter can be summarized as follows:  We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than … Continue reading NDY Files Public Comment on CMS Proposal on Advance Care Planning

NDY Challenges NYS Medicaid Proposal to Save Money By Steering People to Choose Death Over Living With Disability

Not Dead Yet, the Center for Disability Rights, and 11 other NY based disability organizations, submitted public comments on the New York State Medicaid Delivery System Reform Incentive Payment Program (DSRIP) on May 28, 2014, alleging that one of the proposed projects would fund Medicaid providers to save money by steering people to choose death over … Continue reading NDY Challenges NYS Medicaid Proposal to Save Money By Steering People to Choose Death Over Living With Disability